So Emailed Back Vns Survey So Now Just The Waiting Game.... Has Anyone Else Had This Operation Done? | MyEpilepsyTeam

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So Emailed Back Vns Survey So Now Just The Waiting Game.... Has Anyone Else Had This Operation Done?
A MyEpilepsyTeam Member asked a question 💭

They said I'll be in hospital 3 days. I'm not bothered by it I was just curious about length of time and operation length. I'm guessing 2hrs

posted August 20, 2021
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A MyEpilepsyTeam Member

I had this operation done years old and the VNS didn't work for me so I gotten it out. I still have my leads in.

posted February 9, 2022
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I agree i spent a month or so in the hospital for each resection. I did leave the same day for the rns, it doesnt work though. I can feel the shocks but no effect, and i gave up on the magnet. Im on 5 medications just for auras, and ive been dizzy, off balance and falling so they might try to take me off one of the most affective ones. I want to try the rns because medication obviously isnt working. My dr brought it to the epilepsy board? I guess? And theyre nervous because i have a vns already,but id happily turn it off because it makes it hard to talk if i get a shock. They want extra testing and the first is on the 3rd

posted February 8, 2022 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member well now had it done all ain't perfect but a lot better than originally was

posted January 15, 2022
A MyEpilepsyTeam Member

Im on my second unit. It was 3 hours for me as an outpatient.

posted September 21, 2021
A MyEpilepsyTeam Member

I had the VNS implanted and it didn't work for me. I had it taken out.

posted September 1, 2021
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