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So Emailed Back Vns Survey So Now Just The Waiting Game.... Has Anyone Else Had This Operation Done?
So Emailed Back Vns Survey So Now Just The Waiting Game.... Has Anyone Else Had This Operation Done?
They said I'll be in hospital 3 days. I'm not bothered by it I was just curious about length of time and operation length. I'm guessing 2hrs
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A MyEpilepsyTeam Member said:
The device itself is inpatient. They want you to stay for observation for a few days. The first device they put the device and cords in, so it takes LONGER. I'd say maybe 4 hours? It also depends on how long it takes for you to fall asleep.
The actual device does not get turned on.. this is for observation incase of infection. My first device was back in 2013 or 2014.. its been awhile 😅. You will be tired and sore.
I had the battery replaced, it gets easier.
posted 9 months ago
A MyEpilepsyTeam Member said:
Very simple procedure all guided by computer results. Microscopic wires to brain stem + heart. Imperceptible but allow a small magnetic signal to travel to break up the electoral force of the seizure. Didn't help me so simply had it removed. No scars or probs since- was bout 7 years ago.
posted 3 months ago
A MyEpilepsyTeam Member said:
I had this operation done years old and the VNS didn't work for me so I gotten it out. I still have my leads in.
posted 3 months ago
A MyEpilepsyTeam Member said:
@A MyEpilepsyTeam Member I agree i spent a month or so in the hospital for each resection. I did leave the same day for the rns, it doesnt work though. I can feel the shocks but no effect, and i gave up on the magnet. Im on 5 medications just for auras, and ive been dizzy, off balance and falling so they might try to take me off one of the most affective ones. I want to try the rns because medication obviously isnt working. My dr brought it to the epilepsy board? I guess? And theyre nervous because i have a vns already,but id happily turn it off because it makes it hard to talk if i get a shock. They want extra testing and the first is on the 3rd
edited, originally posted 3 months ago
A MyEpilepsyTeam Member said:
@A MyEpilepsyTeam Member well now had it done all ain't perfect but a lot better than originally was
posted 4 months ago
