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RNS Surgery

RNS Surgery

Hey friends,

My doctor has told me that am qualified for RNS surgery, but VNS hasnt helped me at all. If VNS failed to control my seizures, would RNS faill to control my seizures as well?

Is there anyone here who has VNS and failed to control the seizure but RNS controls his/her seizures?

Does anyone experience increasing in sezuire or movements (aura) after RNS surgery, because that what happened while using the VNS.

Thank you,
Feras

posted August 18, 2021
A MyEpilepsyTeam Member

I had the VNS. Neropace surgery 7 years ago and it didn't work out for me. Never controlled my sezuires seeing how it went it made my sezuires kinda worse as after a couple years after the surgery my sezuires shifted to noctornal sezuires that I have every night when I go to sleep and take a nap. I never had the suggestion that RNS surgery would help me.

posted August 18, 2021
A MyEpilepsyTeam Member

The RNS surgery stopped the grand mal seizures that I was having

posted October 1, 2021
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member.I took clonopan and it did nothing for me I started at the recommended dosage and worked my way up and all the dosages did nothing and I had terrible insomnia for years. I did a lot of research on marijuana for years as I hate pharmaceuticals and am big on alternative therapies. I was on every anti-eptiliptic drug imaginable from dilantin to the present kind. My last visit to my neroligest this past August I had the reading from my neropace and I had a significant reduction in sezuire activity since tacking marijuana and hit my first milestone ever in my life I had one sezuire in the whole month of July in my whole life 50years I've never had one sezuire in a month. It helps greatly for me with sleep you just have to watch what kind you are taking which means buying from a certified ,legal and trusted dispenserary and talking to the budtenders and telling them what and why you're taking them for. CBD and edibles and gummys are good for sleep bro but take time more time to enter your bloodstream 3 to4 hours. Smoking works right away. I take a chocolate carmal edible 1 hour before going to sleep and am out like a light and I have no noticeable issues and the best no side effects.

posted August 18, 2021 (edited)
A MyEpilepsyTeam Member

I never had either system. I'm sorry I can't answer your questions.

posted August 18, 2021
A MyEpilepsyTeam Member

Hi,
I have had a VNS for about 2 years and it has not helped at all.

posted October 29
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