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Temporal Lob Epilepsy With Complex

Temporal Lob Epilepsy With Complex

1. What manifestations of temporal lobe seizures have you experienced?

2.What absence seizures have you experienced (other than the typical ones like lips smacking, etc)?

When I'm asking these questions, obviously we don't know ourselves and so we depend on others to record them. So what have they said they observed?

A MyEpilepsyTeam Member said:

I have a seizure where I literally forget to breathe properly ( not grandmal)

Another one I found out that was a thing in the fall, was that I have no sense of smell or taste for the majority of my life, last fall I had random episodes where I developed a sense of smell and taste, and then it would go away. According to other people the taste was accurately represented But the episodes had stopped and than after talking with my neurologist I found out those episodes were actually epileptic activity.

posted 10 months ago
A MyEpilepsyTeam Member said:

I have focal partial seizures with impaired awareness- statuus epilepticus, lasting for 36hours .(also some absence seizures thrown in for good measure !) I tap the wall to the left ,switch the left hand lamp on &off ,move to the edge of the chair &back ,turn round &round ,always have aphasia ( communication difficulties),try to answer the phone when I know I can't communicate,can't add up simple sums 3+3=I don't know !Sorry to ramble on but the automatisms happen every week As my grandson (5) says "are you going to stare at me today like a zombie "

posted 10 months ago
A MyEpilepsyTeam Member said:

I was diagnosed with temporal lobe epilepsy, the most common type, and was told that I had complex partial seizures. My neurologist would ask my husband if I smacked my lips and if I showed certain other signs of this seizure type. I kept telling him that my episodes would start with a feeling of butterflies in my stomach and a little bit of nausea, followed by why I now know as visual disturbances, and an out of body experience. I would be completely aware and conscious, and could speak, but it would be related to what I was visualizing. Reading all the stories from my teammates, I now realize that I suffered from focal aware absence seizure, for 25 years.

posted 9 months ago
A MyEpilepsyTeam Member said:

With partials I am not able to talk, although I know what is going on around me. I sometimes have one where I continue to move my fingers as if I am playing a piano. My doctor told me it was a Jacksonian seizure, many people do not know about them. With research I found out they were named after a doctor named Jackson.

posted 10 months ago
A MyEpilepsyTeam Member said:

hope your doing good and do your best you can and never give up

posted 10 months ago
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