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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What’s Your Tel?

What’s Your Tel?

What is your tel before you seize? Mine happens to be having to pee…no judging…

A MyEpilepsyTeam Member said:

I don’t get warnings. I can go into a seizure, come out of it and not even know about it.

posted 12 months ago
A MyEpilepsyTeam Member said:

Before my surgery I would have deja vu and then an aura. I would pass out from a bad seizure directly after. The last 2 years I have many deja vu episodes along with twitching. Still trying to figure out if they are all seizures.

posted 12 months ago
A MyEpilepsyTeam Member said:

I always get an aura 9 out of 10 before I seizure but don’t necessarily have a seizure straight afterwards,
As I have experienced this many times in the past, I just sit down because 9 out of 10 I have one about 15 minutes later, and it’s always been happening like that in other words if I get a really bad aura I tend to have a seizure come after it, so I will take a seat and try and relax hoping it will pass. It’s very rare but sometimes it does pass and a seizure doesn’t follow at all which is good, but can’t afford to take that chance, but had been steady on my medication for about a year and a half now and due to routine blood test I’m doing good I’m feeling well thank God.
Lee Evans.-🙋‍♂️

posted 12 months ago
A MyEpilepsyTeam Member said:

My guess is that would be an absence seizure. That happened to me a few days ago. Washing my hair, after I put shampoo in my hair A seizure started without me knowing, and shampoo drained into my eyes. When the seizure was over after I “woke up” I could feel how much the shampoo hurt when It was in my eyes. Nobody puts shampoo in their eyes intentionally.

posted 12 months ago
A MyEpilepsyTeam Member said:

Once upon a time, I started with just the deja vu auras. Over time I developed some of the others including the gut aura (feels like a punch in the gut). Unfortunately, years ago I stopped having auras on the same days that I have complex partial or full seizures (and if the doctors confirm whether I am having nocturnal seizures now too) and I don't come out of the full seizure until I have gotten up off of the floor and walked away. Thus, the only time that I am sure that I have a seizure is if someone else witnesses it. My sister (whose house I live in) is very good at convincing my subconscious mind to go lie in bed or sit on the couch (depending upon which floor I am on when I have the full seizure). Since they are absence seizures, I have no clue they happened without a witness to them or if I am very sore out of the blue.

posted 12 months ago
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