I have intractable epilepsy, but it doesn’t define @A MyEpilepsyTeam Member.
Hey all, I'm asking God to give all of us on My Epilepsy Team a seizure-free weekend.
Im having an hour long eeg if i dont have a seizure how can they tell if i have epilepsy and or dissociative seizures im in uk thanks
Sometimes, even though you feel your seizures are in control, it still positive that there is a very mild activity in your brain . Other times they can’t read a thing with no results.
If that… read more
Since it started
Anyone of you hear that progesterone helps to decrease seizures... it is a hormone that is very high in the women's body when pregnant and I have no seizures when I'm pregnant...any one take hormones to decrease?? My neurologists will not help..
Also, what meds were you taking, I hear it can lower tegratol and lamictal levels which I take :(
What kind of progesterone is it... a contraception or? What's it called..and how long have u been seizure free if u have been
...
Do antibiotics increase your chances of having a seizure, even if your epilepsy is well controlled. How soon after starting the antibiotics would you notice increased seizure activity? And how long would this increased activity continue after stopping the antibiotics?
@A MyEpilepsyTeam Member I am on lorazapam. Takes a bit longer to take effect but lasts longer. Hope you are doing well.
I feel I do. Some I just sit or stand (whatever I'm already doing) and talk. Other ones I walk around and swing my arms. That sounds like 2 different seizures.
Fortunately, unless I am not paying attention to my Triggers, I am controlled. However, they are Partial Awareness otherwise called Absence. The really bad ones I used to have to sleep for many hours… read more
If my lips is sore and headaches and body aches too
Has anyone ever done an in-hospital VEEG(mine is going to be 5 days) and NOT had a seizure?
I’m absolutely terrified of this happening. I usually have 3-4 seizures a month. The NP told me if I don’t have a seizure during the VEEG they’re going to say I have PNES(my epileptologist didn’t say this, the NP did). I’m not sure how they can just jump to that if I don’t have a seizure. I don’t understand this!
@A MyEpilepsyTeam Member , there will be a camera in your room , watching you 24/7. If you’re going to be inpatient at a hospital, then they’ll reduce your meds everyday, by so much after the first… read more
Hello everyone . Has any of you had a bad experience with ADE meds, meaning that they end up worsening the seizure activity instead of reducing it. I'm already at the 3rd med that did this and I'm already starting to get worried. I know that worsening seizures is a side effect for all antiepileptic meds, why that happens is beyond my comprehension. Anyway I know this is a rather rare side effect, for example in lamotrigine it's a 1/10000 cases incidence which is very rare but... what the hell… read more
Thank you all for your replies, I did not expect this to be so common side effect and I truly appreciate your replies .After talking with my neurologist yesterday we decided that I should reduce the… read more
And your husband when im.Having one. I know sometimes when I'm about to have one but not always so I really need to find out what this so called watch is so it can alert me when my heart beat changes and my husband when I'm about to or having one on his phone please help thanks
"Things like brushing your teeth can set it off."
I find this quite annoying as brushing your teeth is not an activity which is going to take your heartbeat out to the roof.....Must be a lot of… read more