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Has Enyone Ever Taken Epidiolex (CBD Oil)? If So, What Were Your Miligrams?
A MyEpilepsyTeam Member asked a question πŸ’­

Im taking it twice a day and when I get an aura, it takes it away. And its only 150MG. I think if I have a higher MG, I'll be good. Does anyone have a higher MG?

posted January 15, 2021
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member there is 2 things... cbd and thc. the thc make you feel 'high'. thc also is stronger. cbd has no side effects but it is weaker then the thc.

posted January 28, 2021
A MyEpilepsyTeam Member

I tried it back in January 2019, when medicinal cannabis was first legalized in Florida and Epidiolex was actually the first medication to get on the market. If I remember correctly, they judge how much you take by your weight. Back then I weighed 240 pounds and I believe I got up to max of 300mg twice a day.
It did help control my auras, but I was still having larger seizures. It also had bad mental side effects and caused really bad paranoia, to the point where my neurologist halved my dosage to 150mg twice a day. Now remember we are all different and you may not see these side effects, if it is working well you should talk to your doctor about maybe increasing the dosage and what effects it may cause.
I am glad to hear that raspberry flavored gel is working well for you! Just remember to keep those syringes clean. I pray you will be seizure free.

posted January 15, 2021
A MyEpilepsyTeam Member

SidCobain first you must stop worrying about the situation you can't control the main thing you must do is focusing on your ability to your positive areas in life, your have one important person that will always be there for you and that is God I use to feel the same way until I believe in nothing but positive you are a special person and you are not alone πŸ₯°πŸ€—β˜ΊοΈ

posted January 27, 2021
A MyEpilepsyTeam Member

I know it does, one of my brothers told me he was tired of hearing about my seizures. I pretty much relocated to Palm Springs

posted January 17, 2021
A MyEpilepsyTeam Member

EPILEPTICS are very much misunderstood ~ THIS comes from a lack of
information from our Doctors & not enough PSA out there concerning EPILEPSY coming into the airwaves from The EPILEPSY SOCIETY of Americia !!!! The only people who can change this is US , those who have IT !
i really would LOVE to see a BIG name celebrity come out & say
"My name is ______ & I have EPILEPSY"
IT would really help to be able to look up to someone who we know & to see that they are JUST LIKE US !!!! That would give me a BIG EGO BOOST !

posted January 17, 2021

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