Working With Epilepsy
Working With Epilepsy
How many of you have managed to maintain your full-time jobs with epilepsy? I feel like I was raised to always work hard and ignore every problem, but it is getting hard to manage. I do not have near the issues some people have and I know it's a struggle. After almost 20 years of this, it's finally starting to take it's toll on me. Any advice in this area?
My type of seizures is called partial complex seizures basically i have what the doctor calls blackout. Or as someone here has called them staring seizures. I manage ok. Working full-time most of what keeps me ok is i stay up on my meds but i also have understanding bosses. But I am not sure if they would be as understanding if i had the full body tremors.
I have worked my entire life, with kids and without. Never stopped for any reason. Of course, my boss can't say anything because it's against the law. I am just so run down and exhausted. I actually quit 2 years ago due to having a seizure at work. I figured if it was getting to that point it was time for a break. However, they called me back continually so I came back full time since I ended up there all the time anyway. I often wonder if the medicine is the hardest issue to live with on a daily basis
Feels like you fake it till you make it, but you arent even making it. Its a bandage.
I have cut down my hours so much and I am literally drowning in guilt. I don't know how to fix it though. It feels like a merry-go-round. No matter what, nothing seems to work. It helps knowing someone understands this feeling.
