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Working With Epilepsy

Working With Epilepsy

How many of you have managed to maintain your full-time jobs with epilepsy? I feel like I was raised to always work hard and ignore every problem, but it is getting hard to manage. I do not have near the issues some people have and I know it's a struggle. After almost 20 years of this, it's finally starting to take it's toll on me. Any advice in this area?

A MyEpilepsyTeam Member said:

My type of seizures is called partial complex seizures basically i have what the doctor calls blackout. Or as someone here has called them staring seizures. I manage ok. Working full-time most of what keeps me ok is i stay up on my meds but i also have understanding bosses. But I am not sure if they would be as understanding if i had the full body tremors.

posted 8 months ago
A MyEpilepsyTeam Member said:

I have worked my entire life, with kids and without. Never stopped for any reason. Of course, my boss can't say anything because it's against the law. I am just so run down and exhausted. I actually quit 2 years ago due to having a seizure at work. I figured if it was getting to that point it was time for a break. However, they called me back continually so I came back full time since I ended up there all the time anyway. I often wonder if the medicine is the hardest issue to live with on a daily basis

posted over 1 year ago
A MyEpilepsyTeam Member said:

Feels like you fake it till you make it, but you arent even making it. Its a bandage.

posted 6 months ago
A MyEpilepsyTeam Member said:

I have cut down my hours so much and I am literally drowning in guilt. I don't know how to fix it though. It feels like a merry-go-round. No matter what, nothing seems to work. It helps knowing someone understands this feeling.

posted 6 months ago
A MyEpilepsyTeam Member said:

The guilt can be one of the worst parts sometimes, either you feel bad for not working cause you dont feel well, or not getting something accomplished. Or guilt that maybe staying home and sleeping would help...

posted 7 months ago
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