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Working With Epilepsy
A MyEpilepsyTeam Member asked a question 💭

How many of you have managed to maintain your full-time jobs with epilepsy? I feel like I was raised to always work hard and ignore every problem, but it is getting hard to manage. I do not have near the issues some people have and I know it's a struggle. After almost 20 years of this, it's finally starting to take it's toll on me. Any advice in this area?

posted October 26, 2020
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A MyEpilepsyTeam Member

My type of seizures is called partial complex seizures basically i have what the doctor calls blackout. Or as someone here has called them staring seizures. I manage ok. Working full-time most of what keeps me ok is i stay up on my meds but i also have understanding bosses. But I am not sure if they would be as understanding if i had the full body tremors.

posted October 13, 2021
A MyEpilepsyTeam Member

It's not easy,I know what you are talking about, I had a job at a company working plastics for 8 yrs, I was put on FMLA and that worked out, the next job I had was at dia for a while and I wasn't there that long about a month maybe, had come to work after I had a seizure and didn't know it, after a 1hr 20 min ride got upstairs and some guy came out of nowhere and said dude look at the back of your skull, the boss said we need more people like you, I didn't understand what he was talking about, most people here just call in to take the day off without a valid excuse, the next job after that was with a sign company a small one, bout 20 workers, I lived next door to the my boss I thought was my friend, he knew if my condition and offered me the job and took, after 3 and 3/4 yrs , I was outside and he came up to me and said, I can't have you doing this no more, meaning my condition and my seizures, I went in got my paycheck and quit, haven't worked since a year and 3/4 ago, I'm ok with out that in my life, I hang in there and try and stay pos, and keep my faith in my lord Jesus Christ and my prayer and bible study is my answer here, I am not perfect and do sin but that is my answer and stand firm. My suggestion as well. Hang in there and try and stay pos.

posted January 20
A MyEpilepsyTeam Member

Feels like you fake it till you make it, but you arent even making it. Its a bandage.

posted December 10, 2021
A MyEpilepsyTeam Member

I have cut down my hours so much and I am literally drowning in guilt. I don't know how to fix it though. It feels like a merry-go-round. No matter what, nothing seems to work. It helps knowing someone understands this feeling.

posted December 7, 2021
A MyEpilepsyTeam Member

The guilt can be one of the worst parts sometimes, either you feel bad for not working cause you dont feel well, or not getting something accomplished. Or guilt that maybe staying home and sleeping would help...

posted October 23, 2021

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