I am feeling so hurt and realising reality today. I asked someone at work today if they had seen their neurologist and she said "No next week You've been asking me the same question every time I see you for over a month" Her voice lowered and drifted out by the time she said about the "month". I'm not sure whether she realised my issues or nobody was really listening. the room was full of staff I did say I thought you might of because your voice is croaky as she is having Botox. How much and… read more

Because my dad told me I was at the top of the stairs talking to myself but what I was saying was worded like having a conversation with myself

Ever since I had my first and only grand mal seizure last January, I've had a really hard time talking. With almost every conversation I have I will mess up words that use to be no problem for me. It almost feels like as if my mouth is deformed. At first I thought it was because I talk to fast but when I slow myself down in a conversation then it'll trigger a absence seizure and I won't be able to talk at all.

I always seem to have some sort of headache all the time. Sometimes its barely there. I also have trouble pronouncing words sometimes and just feel like im not really there in the moment. Its creepy. Its like im dissociating. When im explaining something to somebody i also sometimes forget what i was talking about and zone out for a couple seconds, then i cant seem to remember what i was talking about. It also happens when other people are talking to me. Its like i cant comprehend what they are… read more

Do you feel uncomfortable embarrassed strange. Do people seem to look at you strange while talking. Do you have trouble with eye contact. Feel stupid when walking away after a conversation with someone

Does anyone else feel guilty about having a seizure? I know I shouldn't but I feel like I get in trouble when I do.

Does anyone else get offended when a neurologist or hospital says your faking seizures when your not?

Those of you that have had epilepsy for a long time, how often do you need to change medication? Does one work for quite a few years and then your seizures come back, and you have to try a new med? Is it common for people’s bodies get used to the meds?

I fell asleep yesterday just before I was about to eat, I missed eating and taking my medication, then when I woke up over two hours later I took my medication, then I had a fall over on the floor found it hard to get up, I missed eating.