Since my surgery last year with the VNS I continue to have seizures more frequently. The pain I incur when the VNS shocks me hurts so bad in my chest like I'm having a heart attack. Does anyone else feel that
The VNS doesn’t work for everyone. Around the yr 2000 , I had the My VNS put in. It didn’t work well for either. I had the same amount of seizures as I did, before getting it put in. By 2005 the VNS died and stopped working. My Dr. and I agreed, it wasn’t worth continuing with it.
@A MyEpilepsyTeam Member
Not sure if your talking to me or Mdude , but for myself, I have Complex Partial seizures , and absence seizures.
I also have a VNS, since 2011. I don't have more seizures then before my VNS, but continue to have them. The VNS aborts my seizures some of the time. I only feel a sort of "pull" when it goes off. I agree, it should Not be causing any pain! I hope any issues with your VNS can be easily corrected..
That’s ok @A MyEpilepsyTeam Member . We all have those days. Like I said above it’s hard to tell whether or not it will work for you or not . For some of us it works well . For others like myself, it didn’t work well . I was having the same amount of seizures with the VNS as I was before getting it put in.
@A MyEpilepsyTeam Member sherman , Sorry I wasn't clear , I was looking to talk with people that have used a vns and their experiences , I have simple partial seizures , that I've never been to control since I've gotten a bit older , do I was thinking about trying a vns ?