@A MyEpilepsyTeam Member have you ever heard the saying fake it till you make it it’s like your saying I’m ok I’m fine when your not it’s even harder for us When we’re having a bad day it’s ok to say I’m not ok I don’t feel like myself today sometimes we don’t bother with anyone and come on this site and say we’re having a bad day or I’m feeling sad down you don’t have to fake it with us but mums they always know when your not yourself my mum knows that about me and vice Versa a face can tell your not ok without you opening your mouth x x

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A MyEpile...

You will get over it do something that’s fun for you if you don’t want to out with a family member don’t feel obligated and just say no I’m not feeling like going today who wants to go somewhere and not enjoy something because you don’t feel 100% yet now guilt that is a classic don’t ever let anyone guilt you into anything I learned that the hard way I always did not now I set boundaries I don’t feel guilt ridden to do anything I feel relief x x

@A MyEpilepsyTeam Member I might have missed it, but did you say in there is somewhere besides the message about your interaction with your neurologist that you had been tested to confirm it was dementia?

Because while there are sources that provide early signs of dementia like the following: https://www.medicalnewstoday.com/articles/324516

There is no one test that even doctors have to identify whether a person has dementia/Alzheimer's, but here is a listing with regards to that: https://www.alz.org/alzheimers-dementia/what-is....

The key things to ask yourself is this just a more advanced level of absentmindedness or is there another reason? Refer to these links and do as the second one suggests (in terms of accumulating family history and the like that would be useful to your doctor in addition to the testing that they can do along with all of this information to properly diagnose you).

In my case, I would never be able to tell if I had dementia (unless at some point they develop a test or a brain scan that can identify it all by itself) because my memory recall is completely unreliable. I cannot operate in most situations that require a lot of memory recall without notes (auxiliary memory) to allow me to not rely on memory recall.

If your neurologist doesn't want to provide you with the assistance to find out, then talk to your primary care doctor. And, for the record, I will be 54 next month and have had occasions as you described (asking the question many days in a row or even multiple times in the day) years before this.

However, for the importance of reducing stress (which can lead to many other bad things), find a doctor to do the necessary steps to determine whether you have dementia.

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A MyEpile...

@A MyEpilepsyTeam Member I can forget things I can repeat things I have trouble remembering words and trying to get something out and not explaining myself properly when I talk to people and I’m forgetting words I say to them you know what I mean and that’s family I’m a shy person not so much anymore I still constantly repeat myself tell somebody something I’ve already told them so I ask them if I already told them I’m so sorry your going through this and stress won’t help your in my thoughts and prayers x x

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A MyEpile...

I’m glad the tumor is gone my epilepsy is on my left temporal lobe and I also have lesions as well in my brain an operation is out of the question for me I went through all the tests to if I qualified and sadly too many red flags came I have complex partial seizures focal . Absent I take them in my sleep too I have involuntary movements where I can punch myself on the arms it used to be only on my left side but it’s spilt onto the other side as well I’ve had setbacks it’s took me years I was 29 when I was diagnosed now I’m 44 and you do get on with it there’s the anger frustration even at loved ones but mostly at yourself it takes time I know it did for me count to 3 or 50 if that helps I’m here to talk and so is everyone and it’s good to laugh too x x