Happy to know that my new neurologist knew all these new terms and we actually had an intelligent conversation.

I did have a bracelet. I have 8 allergies to medications as well so I'm not sure what to do. The allergy one's I have seen only have penicillin. 2 of the drugs are AED What to do.?

Yes. It kind of helps but I still keep forgetting the actual names and stick to absence or grand mal

@A MyEpilepsyTeam Member Actually, it is not us alone. They don't pay much attention to anyone who has any mental "illness". In fact, mental health doctors have been arguing for years that they should not be labeled mental "illness" but rather disorders or something similar, because "illness" implies that it will just go away or that it is nothing serious and that there is a cure or at least a vaccine (like a flu shot) to reduce the chances of you getting it after you have recovered from it.

Most people who do not have a mental disorder or have a family member or friend who does (and thus seek to learn more about the disorder) do not understand or care to understand someone who has it. In fact, too many think that Epilepsy/Seizure Disorder is contagious. And many treat us like we have leprosy or a plague. And, unlike the physical disorders and disabilities, the mental ones mostly are not visible and thus understood what they are. And even someone who is having a grand mal seizure (with all of the convulsing that many other seizures do not have) are judged by too many to be a person reacting to a drug overdose (rather than having Epilepsy/Seizure Disorder).

However, we need to vent to each other and friends and family, and we need to attempt to educate everyone who give us the time about the different forms of seizures and what to do (and what NOT to do) if they see someone having a seizure or might be having a seizure (since the form of so many of the seizures except for grand mal and the like, are not as obvious as such). We cannot teach the world all at once, but we can try by educating a few at a time who will listen. And they might even share this new knowledge with others that we do not have direct contact with to help get the word out. Baby steps to improving the quality of life for us all.

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@A MyEpilepsyTeam Member You are welcome. We need to do what we can to assist and support our friends on here. And one way that I can is to do research and find answers to some questions asked.

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