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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Did Everyone See This Posting About When And Why Seizures Were Renamed?

Did Everyone See This Posting About When And Why Seizures Were Renamed?

https://www.myepilepsyteam.com/resources/why-di...

A MyEpilepsyTeam Member said:

Happy to know that my new neurologist knew all these new terms and we actually had an intelligent conversation.

posted almost 2 years ago
A MyEpilepsyTeam Member said:

I did have a bracelet. I have 8 allergies to medications as well so I'm not sure what to do. The allergy one's I have seen only have penicillin. 2 of the drugs are AED What to do.?

posted almost 2 years ago
A MyEpilepsyTeam Member said:

Yes. It kind of helps but I still keep forgetting the actual names and stick to absence or grand mal

posted almost 2 years ago
A MyEpilepsyTeam Member said:

@John- I just read the article you cited- it all about mental health,
anxiety, depression etc..Epilepsy is a physical condition how it may
affect us psychologically is the same as any other health problem'
Jewel did not have seizures to cause her mental state."They don't
care" is just one person's reaction to their epilepsy. They need mental
help so why are you agreeing with this dismal view? You've had this
but thought your treatment helped you to cope. I'd like to know if you
if you're just mad at the medical field or if you feel there's no help.

posted about 2 years ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member Actually, it is not us alone. They don't pay much attention to anyone who has any mental "illness". In fact, mental health doctors have been arguing for years that they should not be labeled mental "illness" but rather disorders or something similar, because "illness" implies that it will just go away or that it is nothing serious and that there is a cure or at least a vaccine (like a flu shot) to reduce the chances of you getting it after you have recovered from it.

Most people who do not have a mental disorder or have a family member or friend who does (and thus seek to learn more about the disorder) do not understand or care to understand someone who has it. In fact, too many think that Epilepsy/Seizure Disorder is contagious. And many treat us like we have leprosy or a plague. And, unlike the physical disorders and disabilities, the mental ones mostly are not visible and thus understood what they are. And even someone who is having a grand mal seizure (with all of the convulsing that many other seizures do not have) are judged by too many to be a person reacting to a drug overdose (rather than having Epilepsy/Seizure Disorder).

However, we need to vent to each other and friends and family, and we need to attempt to educate everyone who give us the time about the different forms of seizures and what to do (and what NOT to do) if they see someone having a seizure or might be having a seizure (since the form of so many of the seizures except for grand mal and the like, are not as obvious as such). We cannot teach the world all at once, but we can try by educating a few at a time who will listen. And they might even share this new knowledge with others that we do not have direct contact with to help get the word out. Baby steps to improving the quality of life for us all.

posted about 2 years ago
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