I have both simple and complex partial seizures. The complex partials are under control with meds but I have break thru simple partials. No loss of awareness but my new neurologist claims that I shouldn't drive because he thinks since I'm still having simples, I could possibly have a complex too. His thinking...not mine. He has suddenly told me not to drive, even though I'm experiencing less seizures than I've ever had (30+ years).
In order to keep my freedom, I'm… read more
I had it done and it works great for me. but you have to think and decide really hard, because there are a lot of people who said they had it done And it never worked or it worked for a little bit.
I had to take a risk because I ran out of prescriptions to try And take. I was having 34 or more seizures a month and I couldn’t take it anymore, so I went to the next step I went for the surgery. I got lucky, hopefully if you decide to go for it you get lucky too!💜
I dunno about deja vous and the vns.
1. It’s not a cure. It’s meant to reduce seizures and length of.
2. It takes 2-5 yrs to find the optimal setting... and you will still have seizures. Just not my so many.
3. As a disclaimer, 10% are cured right away.
4.some- you’ll find them in this site, had horrible experiences with it. Either it was a bad unit, the surgeon sucked, the doctor had no clue. It was a total waste of time, etc.
@A MyEpilepsyTeam Member
In my experience with the VNS. It has worked wonderful. But not everybody gets that chance, it’s hard for others to tell you yes go for it or don’t go for it because everyone is different. Sometimes there are people out there who say it didn’t work at all for them or it’s not helping them as much as they want it to. But when it came to me I was very lucky and I took that risk and it helps me out a lot so I got lucky. So what I am telling you is if you really believe that you can take that risk it’s your decision to go for it or don’t go for it. I had to make my own decision and nobody could help me but I had no choice. I used to have 34 or more seizures A month and I ran out of prescriptions to take and that’s why I went for the surgery and it helped me a lot and I will have none for a month or one or two and I accept that and I’m glad I made that decision, but like I said everyone is different. You either take the risk or not. Or keep working on medications, but if you ran out of medications go to the next step take that risk like I did. Like I said I ran out of prescriptions completely.
I have a vns for 10+ years without it I would not have kept my job for 11 years this month go for your goal turn your dreams into reality