Thinking About Having VNS Implant. Is It Worth It? | MyEpilepsyTeam

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Thinking About Having VNS Implant. Is It Worth It?
A MyEpilepsyTeam Member asked a question 💭

I have both simple and complex partial seizures. The complex partials are under control with meds but I have break thru simple partials. No loss of awareness but my new neurologist claims that I shouldn't drive because he thinks since I'm still having simples, I could possibly have a complex too. His thinking...not mine. He has suddenly told me not to drive, even though I'm experiencing less seizures than I've ever had (30+ years).

In order to keep my freedom, I'm wandering how successful… read more

posted July 23, 2020
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A MyEpilepsyTeam Member

I dunno about deja vous and the vns.
Consider this:
1. It’s not a cure. It’s meant to reduce seizures and length of.
2. It takes 2-5 yrs to find the optimal setting... and you will still have seizures. Just not my so many.
3. As a disclaimer, 10% are cured right away.
4.some- you’ll find them in this site, had horrible experiences with it. Either it was a bad unit, the surgeon sucked, the doctor had no clue. It was a total waste of time, etc.

posted July 24, 2020
A MyEpilepsyTeam Member

I have a VNS too it works great..

posted July 30, 2020
A MyEpilepsyTeam Member

This isn’t easy to answer . There are many of us , the VNS has help well and there are many of us where the VNS didn’t work Well.

posted July 26, 2020
A MyEpilepsyTeam Member

Thank you Tiffany! You really put it into perspective...it is a risk but for people like us who have tried virtually every AED, it sounds like a "do-able option". I would like to hear other VNS peoples advice. Thanks again

posted July 24, 2020

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