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Should I Now Push For A Epilepsy Specialist?

Should I Now Push For A Epilepsy Specialist?

My daughter has had absence seizures with her initial diagnosis. Her medication, Trileptal, has controlled her absence seizures for 3 years until now. Right after quarantine, she had an absence seizures, and this past week went into a grand mal seizure. Had her transported to hospital and at first were going to admit her overnight. All of a sudden, the Resident said they were sending her home with an increase of her medication. (The medication makes her very sleepy) Just keep appointment in… read more

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member Yes, I would suggest she see an epileptologist. Especially if it has been a few years that your daughter has been on meds and the seizures are not only happening again but changing as well.

I also encourage you to ask every question you may think of, regardless of how little it may seem. Keep notes of time/date and approximate duration of seizures, as well as what is happening before and what she is like after (when possible). I know it may seem a lot to do but that information can be very useful to not only the doctor but to you as well.

I wish you and yours the best!

posted almost 2 years ago
A MyEpilepsyTeam Member said:

I agree with Randy. While I was seeing a local neurologist, he wasn't much help. When I started going to an epileptologist, he ended up being a lot more help.

posted almost 2 years ago
A MyEpilepsyTeam Member said:

I wish I had a paediatric epileptologist when I was young, maybe my seizures wouldn’t have been so frequent and more specific testing would have been done.

posted almost 2 years ago
A MyEpilepsyTeam Member said:

If you feel her pediatrician neurologist is doing good you can keep him / her . I don’t know what thinks the Dr. has tried, but it will probably be a good idea to find your daughter an Epileptologist .

The Epileptologist may be able to find more than just one or 2 paths to help improve her Epilepsy.

Good luck on your choice of direction,which ever way you choose for your daughter.

posted almost 2 years ago
A MyEpilepsyTeam Member said:

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posted almost 2 years ago
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