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My daughter has had absence seizures with her initial diagnosis. Her medication, Trileptal, has controlled her absence seizures for 3 years until now. Right after quarantine, she had an absence seizures, and this past week went into a grand mal seizure. Had her transported to hospital and at first were going to admit her overnight. All of a sudden, the Resident said they were sending her home with an increase of her medication. (The medication makes her very sleepy) Just keep appointment in… read more
@A MyEpilepsyTeam Member Yes, I would suggest she see an epileptologist. Especially if it has been a few years that your daughter has been on meds and the seizures are not only happening again but changing as well.
I also encourage you to ask every question you may think of, regardless of how little it may seem. Keep notes of time/date and approximate duration of seizures, as well as what is happening before and what she is like after (when possible). I know it may seem a lot to do but that information can be very useful to not only the doctor but to you as well.
I wish you and yours the best!
I agree with Randy. While I was seeing a local neurologist, he wasn't much help. When I started going to an epileptologist, he ended up being a lot more help.
I wish I had a paediatric epileptologist when I was young, maybe my seizures wouldn’t have been so frequent and more specific testing would have been done.
If you feel her pediatrician neurologist is doing good you can keep him / her . I don’t know what thinks the Dr. has tried, but it will probably be a good idea to find your daughter an Epileptologist .
The Epileptologist may be able to find more than just one or 2 paths to help improve her Epilepsy.
Good luck on your choice of direction,which ever way you choose for your daughter.
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