Best way to look at this is in reverse, If you met someone,were
talking and they had a seizure how would you react ? Not with
repulsion but concern for them. I've had many seizures in public
and that's the reaction from others. When I can I tell them what
happened and met other epileptics as a result. Read bout all the
geniuses in history Edison, Einstein, Michelangelo, Dickens, Poe
who were epileptic but had no idea what it was.Socrates felt his
seizures were why he could philosophize like no other, Poe felt
cursed wrote The Raven, Lewis Carroll felt his inspired to write
Alice in Wonderland from his seizure experiences. Research has
given us the ability to understand and control it. Be glad it's not
a heart condition, cancer or a stroke. Instead of hiding away tell
others of your condition. One in 26 Americans are epileptic too.
Margery, I agree with you & one of my favorite ways of looking at things are how much better I have it than how bad off I am. And I try to picture myself self in the place of my family and what would it be like to see one of them having a grand mal seizure & turning blue & all the other things they saw, and they were just little girls when they had to see that so I don't blame them for being scared & having a hard time dealing with my seizures, even though I do feel lonely sometimes I must be understanding & now they are getting better
Hey Chritine u just don't forget that when God made us we all were made with strength and weaknesses and so don't let him pull u down and then we have to stand up for ourselves.
@A MyEpilepsyTeam Member i hope you are able to make that list. Me i dont hide anything from people who say they are my friends or talk to me or ask whats up being fake has never been my strong suit they say if something is bothering you then you need to take about it and on my level yes i need to speak if people dont like it 10/10 times they were never my friends to begin with besides im ok with being alone with myself rather being made to feel alone in a group. I hope you are able to finish that list but never change yourself over other people that's the worst thing you can do.
Just saw my counsellor today and apparently the negative influences in my life is eroding my self-confidence. As he put it, without self-confidence you have nothing. So yes, my self-worth is shaky at the moment. I’m making a list of negative things I need to get out of my life and checking them off as I go. Hopefully by the end of the year they’ll all be crossed off🤞🏻😉. I still try to stay positive for others for the most part. No need to be a gloomy person to be around🙂