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When Your Neurologist Decided That You Needed To Be Sent To A Seizure Center, How Long Was It For?

When Your Neurologist Decided That You Needed To Be Sent To A Seizure Center, How Long Was It For?

I talked to my neurologist via messaging. He told me that once it is safe to do so in Boston and my insurance approves to paying for it, he will be sending me to a seizure center at one of the major hospitals in Boston. How long did you spend in a seizure center after you were sent? Days? Weeks? More?

A MyEpilepsyTeam Member said:

I did this last year- Ended up staying a week. The goal is to see a seizure and/or seizure activity in order to better understand where is the brain your seizures are coming from, if your a candidate for any kind of operation, etc.

It got pretty boring as you're confined to your bed and, at least at Mayo I had to call for a nurse to go to the restroom. I'd recommend bringing puzzles, books, or I loaded my laptop with some movies to occupy my time.

posted 4 days ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member - to ID where in your brain seizures occur involves using an EEG to locate the specific location (e.g. left hippocampus? right hippocampus? etc; over 40 different locations ID'd so far). This key piece of info largely defines what is the next logical step in moving forward. Surgery - yes or no; VNS? vagus nerve stimulation?

In order to find the most correct procedure to follow, an experienced brain surgeon needs first to accurately find location in the brain where seizure activity happens.

posted 14 days ago
A MyEpilepsyTeam Member said:

I spent 3 weeks in a hospital's "Epilepsy" connected 24/7 to an EEG while I was taken off my meds. This helped my neurologist accurately ID the brain location of my seizure activity. Location is key to help a surgeon decide accurate surgery to use.

posted 17 days ago
A MyEpilepsyTeam Member said:

Never been there asa patient but in the U.K. we have a fantastic centre of excellence @Gerrards Cross Bucks U.K. it has the most up to date scanners equipment Specifically desisigned for patients with Epilepsy

posted 18 days ago
A MyEpilepsyTeam Member said:

Well it wasn't exactly a seizure center. It was just a ginormous hospital in Cleveland Ohio. I got sent there for two weeks too get some tests done, then a couple months later I went back for about a week and a half for my surgery.

edited, originally posted 18 days ago
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