I want to be an independence woman, i cant. I feel my family stops me because they wont let me do anything on my own without having to remind me that ive got epilespy. I want to be brave and try go out there in the world and not hide. Ive been hiding all my life so far, just stuck in the house because im afraid. No one understands how hard it is. As much as i want to try ignore that ive got this diagnose. I just want to try fit in with my brother and sisters too, they always going out freely… read more
My family prevented me from doing things growing up. But it was because my family loved me and they were playing it safe. But eventually I would have to be persistent and tell them. For example: when I graduated High School and I was registering to go to a Community College. I told my parents, " If you don't let me get my drivers license and my own car to drive back and forth to college. You would have to drive me. Do you really want to drive me to College everyday?" My parents responded no, they don't want to drive me so they let me get my driving permit, then they hired a driving school to pick me up. Then the driving school prepared me and brought me to take the test. I passed on the first time. Finally I could drive myself to college and get a new freedom in my life. I got my drivers license at age 18. That was all a long time ago. And that is how life is, it gives you obstacles and challenges. You have to figure out how to solve them and move forward.
There are a couple of scenarios being possibly played out here. Your parents/family may be over protective of you. Another could be that you are their reason for living which is being taken a bit to far. Either way, the best case scenario would be for them to let you feel your wings carrying you into new adventures and assuring you that they are there for you if you need their help. Have they contemplated the idea of being invited to your home for a visit.or a meal? You said something very important in your post. That you are a woman as opposed to a 15 year old child. A woman is not under parental authority. Although respect of parents is a good thing if they do not bring you to a state of wrath. But as a woman who is in good health despite your epilepsy you can move out tomorrow if you want and have a suitable place to live. I had to do my preparations behind my mother's back. But things worked out. Admittedly, I was living in a home elsewhere instead of with her. When all was finalised and I was a couple of weeks from moving, then I dropped the bomb. But I moved out of the home. And I am glad I did. 😃
I am the only one of my brothers and sisters that has epilepsy. They still call me their baby brother I am 47. It can be very frustrating. I pray that you can find a way to do things but do them safely. Some people have cameras in their house and others have people who check on them. I will pray that you don’t feel bad about yourself. You are a wonderful person. Don’t forget that. Have a blessed night
I feel the exact same way. While I’ve only just begun this journey with seizures, the loss of independence has been absolutely devastating for me. In my state, you have to be seizure free for 6 months before you can drive again. Unfortunately, I’ll get like 2-3 months without one and then I have one again. I live in an apartment with a room mate who doesn’t help really (which I don’t expect her to) and my friends and my family help me get around. My co workers have been wonderful in helping me get to work. But I hate it. I hate not being able to go where I want when I want. I hate having to coordinate rides everywhere every day. I am not me anymore...This has taken everything from me. And what sucks is I know what that freedom is like because I’ve always had it. I just want to get to a seizure free state...I’ll do anything. I feel helpless, hopeless, depressed and desperate for answers.
Hi @A MyEpilepsyTeam Member . Im 45 and my mom still considers me her baby too. I don’t think I ever heard her call my older sister, her baby .
Then again , I as a parent of 2 teen daughters, My wife and I call both our girls, our babies . We make sure they hear it from us.
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