I have a hard time remembering and it might not be EEG. It is a 5 day 4 night test in the hospital to help with my seizures.

Kiddo has several “sub clinical” seizures an hour. We’re getting ready to see the seizure specialist team at Childrens but I’m trying to get a better understanding of her journey. Her other seizures are absence and tonic clonic and most recently new facial tic type seizure.

I'm doing this in a few weeks I'm just wondering what it was like and whether it had any impact on your current treatment.

Thanks.

I've been instructed to slowly decrease my medications in a 6 week time frame for EGG test I need to get done , i just wanted to know has anyone had to do this and what side effects did you feel during that process.

I know this is a random question but I have to do a at home eeg next week and at the same time the Aus epilepsy project wants to interview me via phone to participate. Anyway I'm pretty sure I can't be on the phone while doing the eeg but..... just to confirm? lol

EDIT
Just a update with this I went and got hooked up the other day as everyone probably knows by now. I wore my Fitbit to the hook up and was expecting to be told I would have to take it off but as it turns out nope. Not with a… read more

So, I've been seeing a regular neurologist for about 3 years now (partial seizures). I had a seizure last month and after that one my neurologist finally referred me to a seizure specialist, my appointment scheduled in October. It's going to be a full day event, I'm going to have a EEG done in the morning and I'll meet back with the doctor later on.

Has anyone ever done an in-hospital VEEG(mine is going to be 5 days) and NOT had a seizure?

I’m absolutely terrified of this happening. I usually have 3-4 seizures a month. The NP told me if I don’t have a seizure during the VEEG they’re going to say I have PNES(my epileptologist didn’t say this, the NP did). I’m not sure how they can just jump to that if I don’t have a seizure. I don’t understand this!

I’ve been in a few inpatient EEGs . The Dr. Wants me to show large seizures. But my medication could be near nothing and not showing any Large seizures, that they are looking for . My mild and moderate seizures aren’t enough. I was even offered food or beverages that could trigger my seizures.

I finally saw an epileptologist in Toronto who wants me to spend 10 to 14 days inside a hospital room with electrodes on my head and cameras on me as they take me off my meds until I have a seizure, which may be 'worse than usual.' Then they figure out what causes my seizures and put me on the right meds and turf me out to make room for the person.

Has anyone else been through this? I am so thrilled someone is trying to help and not just blaming me for all my symptoms.

I thought I was having focal aware seizures, but I finally got a 24-hour VEEG and they said it was negative. So I received the diagnosis of NES (non-epileptic seizures). Has this happened to anyone else? I finally have an appointment with a good neuropsychologist, and will go through that type of testing on 10/12/21 (3-4 hour testing ugh). Thanks for any help all.