Has anyone been dx with Mesial Temporal Sclerosis. From what i understand its responsible for at least 90% of retractable epilepsy. The only treatment is brain surgery. I am being tested. Did u have the surgery. What was your sucess. How was the surgery. Any info would b helpful
@A MyEpilepsyTeam Member drs will always do surgery before alternative treatment. did you try hyperbolic oxygen treatment or the keto diet or cbd or cbd with thc in it (mine is the oil)? i have complex partial cause by food. drs got surgery to cure the seizures and that kinda worked (cures my grand mals). the side effects the surgery is awful. i had to re-learn to walk and a little talk. about less than 20 years and i still am getting the effects of the surgery.
North no I don't have MTS. Mine came for the left frontal lobe.
I have been seizure free for 13 years. Since the operation. I don't have any side effects. Try my email again. You probably forget the period. (Email address can only be seen by the question and answer creators)
@A MyEpilepsyTeam Member... did you know that celiac disease attack the weakest link. my hole family has celeac disease but only i have seizures. one of my family actually has rheumatoid arthritis (mostly the fingers). by celeac. most drs get 1 thing at the body and thats it. our bodys are more than 1 part.
some cbd is for some and not others. and some need to be less strength and some more. i found my sweet spot and i hope that you will find yours.
as the surgery ... the 1/2 of the brain disconnected and part is removed. that is a hemispherexamy and that surgery is what i had.
@A MyEpilepsyTeam Member. Hi bryan. Thanks for the response. Sorry to hear about your celiac. My RA is immune system also interesting we both have it. I have asked docs many times about a connection. They always say no. Im not sure of that. My daughter bought my cbd oil as a gift. Shes a chemist so she checked it out for purity ect. I will mention the koy to her
She continues to talk about trying actual pot. Unfortunately its still not legal in my state. So... well u know. It might help from what i have read. My doc did say surgery would b last resort. From what i have read the entire hipocampus is removed and 1/2 of the amygdala that will cause alot of after affects especially since its on the dominate side. Ill.
Have to really way pros and cons if its presented. Thanks for your input i really appreciate it