Hi! If you are on medicine to control your seizures, do you find that it helps so your triggers don't set off a seizure? Or do you find that you still have seizures as usual when triggered? For instance, one trigger for me is caffeine. I can tolerate very little. If I have too much, I have a seizure. Is this normal since even though I am on medication?
It def helps my boyfriend to be on medicine control. He takes CBD and its allowed him to lower his seizure medication dose...hes been seizure free for over 1 year after having seizures for over 10 years...he tries to avoid sugar, take his medicine at the proper time and get enough sleep as well as manage his stress
I still have seizures even without triggers
That's what's been helping me too! It does work.
Some of mine seem to be when overtired and using telephones. If I use phones I have to ask the other person not to go too quickly. I struggle to keep with the conversation. Mine started after falling 4 metres landing head first on solid stone 10 years ago and I'm in constant with back pain as it damaged my spine so pain is a trigger too. I don't go many days without at least 1 seizure when I have a seizure I normally have multiple seizures.
Infortunatly mine are caused by stress there tonic clinic so I've no warnings either my last one was Sept last year then feb that year I've recently seen my neurologist who doesn't think it's necessary 4 an mri well I do as only had one 10 years ago