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Another Question About VNS
A MyEpilepsyTeam Member asked a question 💭

How many people have had a VNS that only have.
gran mal seizures every 2 to 3 months? Although mine have gotten worse over time, i see people that have multiple seizures everyday or in a weekly basis. Ir those that are on multiple medications and still have them every 2 or 3 months?

posted September 14, 2019
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A MyEpilepsyTeam Member

My seizures were more severe and more often, had test brain surgery seeing if main could be done. Lucky to where it could, lasted for 10years before started having them again. The had VNS surgery, has helped me.

posted September 14, 2019
A MyEpilepsyTeam Member

My vns took me from a GM every week to a now an SP once a month that I can stop turning into a GM and maybe a break thru GM that is unstoppable once or twice a year. I always look back and see there was a trigger. I was sick (cold meds- antibiotics) too much caffeine, hot outside, over stressed, poor sleep. They weren't random is my point.
Best regard, jeff

posted September 14, 2019
A MyEpilepsyTeam Member

No I don't have it myself .
Don't need it .

posted September 14, 2019
A MyEpilepsyTeam Member

I've had VNS for about 3.5 years. And, while my medication doses have doubled since, it still helps. I have 2-3 grands a week, and multiple complex partials a day (sometimes 20 or 30).
If they aren't weekly or daily, I think it'd work pretty well, or do you already have the VNS?

posted September 14, 2019
A MyEpilepsyTeam Member

I have had have had one but in me .
But do know how that had one put in her through .
It works great on her .

posted September 14, 2019

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