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My Husband Was Just Diagnosed With Focal Cortical Dysplasia. Is Anyone Familiar With This?

My Husband Was Just Diagnosed With Focal Cortical Dysplasia. Is Anyone Familiar With This?

A MyEpilepsyTeam Member said:

It’s a fancy way of saying that a part of the cortical lobe hasn’t form properly and is causing medically intractable epilepsy. (Why they use these big terms to describe something so simple is beyond me.)

posted about 1 year ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member feel free to read my story on my profile. I hope you find it informative and uplifting.

posted 12 months ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member you are so very welcome. I’m so very sorry for what your Doctor has put you through. I know, through personal experience, how sad it is when we have to take control over certain situations, and force the Doctor’s hand to give the necessary referral so your loved ones can get the care they so desperately need. All my best to you and your husband. God Bless

posted 12 months ago
A MyEpilepsyTeam Member said:

Tegretol and Trazadone reduce the body’s sodium levels. When taken together in high doses (as in your case) this explains your very low sodium levels. This is something you might want to address with your Neurologist, Epileptologist, or family Doctor.

posted 12 months ago
A MyEpilepsyTeam Member said:

It's a malformation of cortical development of the brain which is the main cause of medical refractory epilepsy which is a type of epilepsy that cannot be controlled with meds.
Refractory in real terms means uncontrolled.

posted 12 months ago
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