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My neurologist got angry with me at my last appointment because I said I didn't want to try anymore medication as 6 of them didnt work , they gave me terrible side effects and they all increased my seizures. I have now changed my neurologist after 10 years because they have been very unsportive with my epilepsy treatment and I felt unlisted to.
Talk to your Dr. About Refractery Epilepsy ( Resistant to the Medication ) . Your Doctor may try a few more before thinking of alternatives treatments
Im in the same situation. But I wasn’t… read more
My Rabbit and Guinea Pigs Help Me
Potential Nocturnal seizure
From what I have learned in the past the dog has to build a very strong bond with the owner of their dog. Nobody else can feed it, pet it, and talk to it. Their attention would not be strong enough… read more
Can you live by yourself & have a response dog? What other options are there?? I need answers not hugs.
Hugs are nice but answers are what I am looking for.
If you have the confidence to living , working and managing yourself , then you don’t need a care giver.
it depends on the type of seizures you have
I was wondering when you seek a second or third opinion from a doctor do you tell ,share include all your diagnosis from previous doctors, neurologist .
Should that information be included?
would those previous diagnosis or medical opinions affect the opinion of the new doctor your seeing?
That's what my concern is really is that they will just agree with previous diagnosis.
@A MyEpilepsyTeam Member Dufresne
It's hard to obtain records when your doctor permanently closes his or her office and takes all records with him.. (Left no forwarding address.)
Doctors who think… read more
Can it make me sick? Or can it make my seizure medication less effective?
I don't think it does Stacey. How serious is your kidney infection? I would just talk to your Dr. A lot of those meds like that don't interfere or lessen the effects. I'm more concerned there is… read more
I get plenty of sleep.
Attempt to help others. I like to be the dog of the team🐕🦺
B
That’s how they usually work but fortunately so far the blackout goes away and I am able to recall all previous events. Thanks
I cut back on meds because I couldn't even function I was so exhausted and depressed and used to being very active. Now I'm supposed to go on Lamictal and dread more side effects. The neurology team I'm on will be discussing me this week and because nothing has worked so far on my seizures, they're leaning more on surgery but I'm not. The only thing is I found out in the hospital that I'm having them at night which I had no idea about and scares me as I have no idea how I'll know if I'm ever… read more
As you know by now we who suffer are made lab rats for the drug industry
Don't get me wrong there are both good and bad medications that work in different ways for each person
Myself over the… read more