I’ve had both surgeries suggested to me and I’m not sure how to proceed. Anyone who’s had these surgeries what do you think? Honestly, I’m scared but I’m so tired of the seizures.
I had a right temporal lobectomy, wouldn't recommend it. You can have the VNS removed or turned off, but surgery is no going back. One thing I've read about VNS, and seen in online videos of VNS patients, is that it puts them in this dazed state, just out of it. A doctor wanted me to do VNS, but it was brand new back then and I had concerns about sending electrical shocks to the brain. So I went with surgery. I think in my case it was a tumor, they never told me what they discovered. If I could it over, I'd go with VNS. Maybe they've gotten the voltage and amperage figured out by now, and things are better.
Check youtube for patient videos.
I was never anything to begin with, so I guess it didn't. I think it may have changed my personality, but the weird/awesome thing is the brain is the seat of consciousness. Sort of like a drunk person insisting he's not drunk. Wish I had made videos of what I used to be like, to know how it changed me. Read once that surgery to the left hemispere will cause deficits, and the person will know, while surgery to the right hemispere will also cause deficits, but the person won't know it. I'm fascinated by the brain.
Thoroughly research 'Left Temporal Lobectomies' and its effects before jumping onto that train.
I have less seizures with the vns you still have to take medicine but you have better control cause you can stop them with a magnet they give you
I have a VNS because I was not a candidate for brain surgery, so usually your doctor will have an opinion over which is more effective. Look into the types of seizures that you are having and if they are super localized and have a definitive point of origin than surgery may be right for you. VNS sends the waves over the whole brain, and while it is not damaging, it does require upkeep and monitoring which the surgery would not. Both of them are daunting, but they are also common practice now, and I would say more is known about the surgery and it's risks are minimal.