Hi, this forum is very important and helpful for those suffering and needing advice. Recently I have noticed people abusing the forum and treating it as a dating site - giving out private email addresses and phone numbers to those that are vulnerable. Please don't abuse the site in this way (I'm not mentioning names but you know who you are).Thank you.
welll I say no not a dating site there are lots of them out there but I see why two would hook up they understand what is doing on with you in part
I got the majority of the "important" questions answered that i asked my docs. I just forgot to ask, how long it takes for the chunk of skull to heal that they cut? Do they use screws to hold it together? Can you feel the fact your skull has been cut or that there are screws(if there is screws)? If anyone has has a resection, do you know a rough estimate what the answers would be? I know i can always ask the day of surgery for more exact answers, i just kinda want to go into knowing ahead of… read more
Research on a reputable site like Mayo, Cleveland, John's Hopkins clinics. Put your questions on Google and choose what those sites offer. This will help you ask better questions as well
Also Gigi… read more
My adult son has me at my breaking point. He is so evil. He refuses to get help as he thinks he doesn't need it. I've been dealing with this forever and I can't do it anymore. Please share your stories. God bless
So, a friend of mine gave me a suggestion that I hadn't thought of that could be helpful for me. At this time, I'm afraid for my safety due to the anger I spoke of. I am afraid to call the police… read more
As I have discussed with some of you, I try to send a greeting and add all new members to my team to help to get answers for them. However, there are a lot more of you have personal experience with implants like VNS, RNS, etc. and various brain surgeries, versions of the Keto diet, use of other alternative treatments and anticonvulsants and the like that I do not personally have.
How can we improve things for them even while we consider the meetings and the likes for some of us?
The… read more
Nonprofit creators, John Dufresne? Are you certain?
12/25 First episode, in and out of ICU on Keppra 1000mg / upping to 100mg of Lamictal today. I still have at least one episode every day, mostly between 1:00 am - 6:00 am. but have had ones at 8,9,10 & 11 am.
Here are some links to read,
https://www.verywellhealth.com/epilepsy-4014729
https://medlineplus.gov/druginfo/meds/a699059.html
https://medlineplus.gov/druginfo/meds/a695007.html
Please do answer as it would be very helpful if you can tell me your experience!! And happy epilepsy awareness month 💜💜💜💜
Hiii,
This is day 3 of the home telemetry video eeg. So far I been struggling to sleep. And I am kinda worried that if nothing appears.
I been seeing the coloured flashing lights a lot during this… read more
I have epilepsy and my son is currently doing a college project to promote epilepsy awareness, remove the stigma of it. He needs an epilepsy medical expert & advocate to contact in the next day or two to answer @ 4 questions for it. He would only need 1 - 2 sentence answers. Any help is appreciated.
The #1 site
Locally --- www.epilepsy.com
The #2 site, is more for non-medical issues of Epilepsy.
International League Against Epilepsy (ILAE),
www.ilae.org
#3 has some good articles but I… read more
I just got one tells Me they're My insurance company and asking Me info the type of car. They would have all the info before calling. I just told Cold Call...I don't drive...I don't have a license...I have Epilepsy!... She said that She was sorry 😉
I ignore the calls and laugh when I listen to the message they save on my voicemail about going to close me car insurance file unless I call soon. And then I simply delete it. I know I can keep… read more
How do some people control there seizures? Like i know some people control there seizures and don't have them anymore.
I read somewhere up there someone saying they do not know what kind of seizures they have one thing to do is to look at all the different types of seizures out there I Googled it. You want to do it… read more
Actually, the general answer is right in the Resource section on this site and the link to it is posted on my page. @A MyEpilepsyTeam Member It happens during a drop seizure partly because the… read more