I never had a neurologist or any doctor take to time to explain to me that not all seizures involve convulsing, falling, fainting or locking up. For years I contemplated suicide because I thought I was losing my mind, becoming "slow," becoming psychotic, etc. It took me years and my own exploring and research to learn that a lot of what I was and continue to feel or experience (becoming scared and deathly afraid out of the blue, forgetting my own name, confusing mustard with honey, knowing what… read more
Thank you all ! I to live positive, Epilepsy does not or will not define who I am, Knowledge is power!
https://www.epilepsy.com/connect/forums/living-...
https://www.mayoclinic.org/diseases-conditions/...
These are just a couple links I bookmarked
My past neurologists and today Epileptologists always explained to me what type of Epilepsy and the kinds of seizures that I have relating to my Epilepsy. I was also told that many of my struggles with memory, comprehension, talking and slurring, slow motor skills, dealing with learning and ect , is all part of living with Epilepsy.
If it wasn’t from my Dr. it was also from my Epilepsy Support Groups. I learned that, there are different forms of Epilepsy and many other kinds of seizures. Finding out how similar but different we all are , with our Epilepsy. Between the staff and my group , they all helped me overcome and cope with those many struggles with epilepsy. Our Epilepsy, and the big package that’s rolled up in ball, full of extra FACTS OF LIFE . You either fight and be positive and face up to the challenge or let it all take you down , where you feel depressed , sad , worthless and the many other negative emotions.
I follow my number one rule . I control my life not Epilepsy. There are just many speed bumps in the way and have to find my way over them.
I had a wonderful neurologist who helped me so much (he’s moved now and I have to find another). My aunt was epileptic so my mom knew a lot about it. I’m sorry you’ve had to experience this.
@A MyEpilepsyTeam Member, check with the Epilepsy Foundation in your state. Ask the about books and DVDs on Epilepsy.