Apologies if this has already been asked. But does anyone get upset about how people with epilepsy are portrayed in tv programmes and films. I watched something (not going to name) and found it a bit upsetting. I know it has to be shown in the media but it needs to be accurate and the help should be shown. It should be shown that having epilepsy is not all bad news.
Yes, I can see why a potential celebrity spokesperson might shy away from the stigma of epilepsy. But some have dealt publicly with even more embarrassing matters; reference Farrah Fawcette and her battle with anal cancer.
And while we’re at it, can we please stop calling seizures fits?! Fits sounds like a child having a temper tantrum. 🙄 it also helps perpetuate some of those myths about a serious neurological condition.
Google search epilepsy in movies and there's a Norwegian site that'll be on the first page called tidsskriftet.com in English. It was published November 1, 2018. It tells of epilepsy in both literature and movies. the literature in ancient times as well of modern times. Movies such as The Film Control (2007) to Natalie Portman's character in The Garden State (2004). There has been stereotypes to portraying epilepsy in a positive way in literature and movies. Most of the movies won't show the character having a seizure. They seem to pick on the generalized variety when they portray epilepsy.
People should understand epilepsy much better than they do anyway coz 1% of the worlds population suffers from it and obviously not everyone is controlled so a lot of people would have seen/witnessed a turn. So why believe the rubbish on TV shows?!
@A MyEpilepsyTeam Member @A MyEpilepsyTeam Member there are many famous Epileptics from singer/songwriter and all round hippy legend Neil Young to Champion boxer Terry Marsh . I used to write a daily piece around xmas about 12 inspirational epileptics . (To me anyway) . They're on my timeline if you'd like to find out about a few . People dont see it as the terrible affliction it is as all we are shown is Grand mal /tonic clonics on tv when there are so many other issues that come with the condition . Awareness is slowly coming but not enough . People are afriad and ive mwt many people that haven't understood the issue until they've first hand fot to know me and how it can sometimes affect our lives immensely . Even at work doing health and safety inductions and workshops ive found the information unhelpful and outdated . I always feel it my duty to point out thats not how epilepsy is defined . Even on my Facebook page i try to help people understand more but many seem too afraid (which i understand as it isn't nice to see bit is worse to live with daily for us and our families and friends) .