I had a brain ressection April 20th. My surgeon told me he was not able to remove all the tissue with the iron deposits, a cavernoma had bled in the frontal lobe right near the edge of the part of my brain responsible for motor function of my left leg. I was left with residual weakness in my left leg that we hope PT will help.
Issue, a couple days after completely stopping my pain med (hydromorphone, evil pill) and being started on elliquis for a blood clot I began having a different seizure… read more
Over my lifetime I’ve discovered that many of my seizures are brought on by worry. Your experiences are similar to those that I had, in that you’re having multiple seizures after having had an operation. I believe that it would benefit you to take part in an Epilepsy Rap Session which should be provided by a hospital 🏥 in your neighborhood. Over the years, doing so provides me with emotional ease, thereby minimizing the number of seizures that I have.
Yes I could handle the seizures I believe if I could get control of the depression. It came out of no where. This is not like me. As well the aura now seems to stay all day. I read an article that stated how lactic acid in the muscle is used during a muscular seizure, thus relaxing the muscle. Changing the pH in the muscle and causes metabolic acidosis in the muscle, thus terminating the seizure. I no longer have the muscular seizure, however it is very obvious to me that the neurons are still over firing, giving my muscle that pre-seizure feeling. Not just an aura. No amount of stretching or trying to use the muscle is using enough of the lactic acid to relax the leg muscles. It leaves me with the feeling that I am constantly on the verge of a seizure. Then occasionally the seizure seems to spread causing it to move into other parts of the brain causing crying spells that are intense. These are not a normal I'm just sad and tearful crying. They come after an aura starts and come in waves lasting about an hour. They raise my blood pressure and pulse to dangerous levels per the ER doctors. I am hoping time may change some of this. It has been 6 weeks. This week I have only had 1 of the crying spells and was able to stop it with Ativan and clonazepam. Still it lasted around 45 minutes. It just seems its complicated the seizures for me.
In 98” I had my brain. I still seizure on aver of once a day or a month.
Before my surgery, my seizures were sever. After my surgery , I have milde to moderate seizures.
I may not. Be seizure free , but it was overall worth it.
Thank you Terry. I have my neurology appointment Friday. Almost any activity will set off my seizures now. I can sleep, sometimes eat and would fall on my face if I tried to run. I'm usually a pretty up person. My health just continues to decrease. It's like having a brain stuck inside a body that doesnt work right. I dont have any idea how long they plan on leaving me this way. Too late to put the brain tissue back. I just cant see an outcome right now and I'm so sad.
Dawn no matter what happens just never give up always try and stay positive as I do know its very hard lots of time, I hope all works out good soon for you dear but keep trying something has to come about good