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Neurologists - Do They Dismiss Fatigue And Nocturnal Seizures?

Neurologists - Do They Dismiss Fatigue And Nocturnal Seizures?

My nuero is supposed to be one of the best in the country however when I've mentioned nocturnal seizures which Im pretty sure I've had he dismisses it as there is no hard evidence. He also dismisses my migraines and exhaustion and dizzyness and is now dismissing the fact the nurse I saw thinks it is hormone related. He won't even bring forward my appointment. Is this normal of neurologists? I only got diagnosed a yr and a half ago so I don't know if this is typical of them after starting u on… read more

A MyEpilepsyTeam Member said:

If you are not totally satisfied look for some one else. I was with mine for 37 yrs and I switch and I’m doing better I’m taking 300 mg of seizures medicine instead of 1600 mg and I not sleeping all day I have more energy , I feel alive for the first time in many years

posted about 3 years ago
A MyEpilepsyTeam Member said:

I've had terrible experiences with neurologists and finally stopped going when I told him the Effexor he had me on made me suicidal. He convinced me to try botox injections in my head to stop migraines, but I don't have migraines. I have an inoperable cavernous sinus brain tumor. F'ing idiots. I have more nocturnal than daytime seizures and always have. I was born with vertiginous epilepsy and not diagnosed until I was 63 years old. I'm 71 now, using full spectrum cbd oil along with cannabis oil and I'm seizure free. Please try this.

posted about 3 years ago
A MyEpilepsyTeam Member said:

HI, from what You have written this Dr. seems to have a pretty high opinion of himself. He is telling You that migraine headaches etc are not real? It is not uncommon for a person that has epilepsy to have migraine headaches, that is the kind they do have. Seizures cause people to have them. I don't like to be rude or insensitive, Please do Yourself a favor-Find a new Neurologist. As Soon As Possible.

posted about 3 years ago
A MyEpilepsyTeam Member said:

No not at all! You should be having an EEG study done to determine whether or not you have seizures while asleep. Also the dizziness and fatigue is normal with the meds too!

posted about 3 years ago
A MyEpilepsyTeam Member said:

Who in the world would want to fake seizures, going though it is bad enough but what you have to deal with other other people, it’s not a picnic

posted about 3 years ago
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