Does anyone who is single find it hard to find that special someone who understands you and what living with epilepsy is like.
It seems to me that as soon as you say epilepsy people run a mile.
Maybe it's me or the fact they don't understand it or scared?

You see people who make fun of people with grandmal seizures or use them in their pranks.
So how would you go about making them understand what its like to live with epilepsy and what its like in those moments? When i think about how i would go about i can honestly say I dont know and I dont know if i could ever make them understand because they dont walk in my shoes or anyone elses shoes with epilepsy

Like when people don’t understand what you’re going through. Won’t give you more advice 😢😢😢😭😭😭

What do you think that could be made available to you that would help you better?

I'm finding it hard to keep a relationship due to epilepsy I'm afraid to tell them incase they run or get freaked out over it. It's frightening any advice

I know it sounds stupid, but I am starting to forget things more things and I am scared. My husband and others make me feel bad sometimes because I tell them things and they say I know that, you told me yesterday.

Why do I keep on having myoclonics sometimes when I'm asleep or just taking a nap? I just want it all to go away.

can you get panic attacks with epilepsy? is anxiety part of epilepsy? i have anxiety everyday mild panic attacks if and the fact that it feels like my heart is literally going to beat out of my chest is scary on its own its all weird and i get these tics but they are actually more like jerks and sometimes i can be sitting down and my body just jumps like i was scared or something my daughters doctor asked me if i was ok because i was sitting still then i just jerk or whatever you call it

Does anyone have seizures and just want to be quiet for a few days afterwards. The reason I ask is I have had a bad seizure at the weekend and my in-laws have been down today yet my father-in-law wants to be all jokey and they wonder why I am quiet.

I have been very independant all my life wanting to do everything on my own even 22 years after my diagnosis I'm still like this, and it's hard for me to let others who actually want to help me, help me. I push people away. my best friends and greatest support fight back and refuse to let me push them away. but even though I know (now) i cant do this alone and i do have to rely on others i still find myself fighting this struggle to go at it alone.