Does Anybody Have Their Seizures After Standing Up? | MyEpilepsyTeam

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Does Anybody Have Their Seizures After Standing Up?
A MyEpilepsyTeam Member asked a question 💭

I've had epilepsy since I was six (almost twenty years), and I have myoclonic, absence, eyelid myoclonia, nocturnal, and tonic clonic seizures. The tonic clonic were under control for about a year and a half, but started again in November. Usually they happen within ten steps after getting out of bed if I jump up too quickly after waking up, so I have always attributed it to waking up. Recently they have started happening after standing up, whether I've been asleep or not. Does anybody… read more

posted February 17, 2019
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A MyEpilepsyTeam Member

I can have a seizure at anytime or anywhere .Doesn’t matter , if I’m standing or sitting. They come out of the blue unpredictably.

posted February 20, 2019
A MyEpilepsyTeam Member

Terribee, that's 100% what I'm talking about! Thanks! Yeah, I've been hurt quite seriously a few times. Hopefully you have a good support system around you. That makes a huge difference.

posted February 19, 2019
A MyEpilepsyTeam Member

When laying down, and often when asleep the blood pressure is lower, as your heart is horizontal and we relax. upon standing up and moving around too quickly, the brain gets deprived of bloodflow, as the blood pressure has not increased to normal range and syncope happens. You pass out.
It has been happening to me for the last 5 years. Only preventative is to sit up in bed for a couple minutes before walking around.

There's also something called micturition syncope where you wake up in a hurry and have to visit the restroom to urinate. When finished, you pass out. Sounds funny, but it's serious. Mostly in men. Combined with getting up from horizontal position too fast, relieving the bladder also drops flood pressure and can result in passing out.
No cure except to 1) get out of bed slowly
2) sit down on the potty.
Sorry to be blunt.

Do you seize? Only know if someone witnesses.

posted February 17, 2019
A MyEpilepsyTeam Member

I used to think I was fainting

posted February 17, 2019
A MyEpilepsyTeam Member

Yes, I get out of bed and black out and fall down for a minute

posted February 17, 2019

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