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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone On Trileptal Have Memory Loss?

Anyone On Trileptal Have Memory Loss?

A MyEpilepsyTeam Member said:

Yes, Missy Carr, I have bean taking Trileptal 1800mg a day for 18+ years. I have experienced short term memory loss over the years. Seizures have contributed to the memory loss as well but I have had, and still experience memory loss. I also experience insomnia, lack of appetite, depression, suicidal thoughts (not attempts but thoughts), lack of energy (probably associated with lack of eating)...all I can think of now.

I have stayed on it because it is the only medication that stopped my nocturnal seizures (that is when I had my tonic-clonic seizures). So those side effects had become my new "normal".

Let me note...the suicidal thoughts were addressed with Citalipram 30mg at night. Just saying my own experience...this may be different, of course, for other people.

posted over 3 years ago
A MyEpilepsyTeam Member said:

Of course-when, a seizure happens the sub-conscious takes over like
sleepwalking. So you "wake up" and are fully aware but no memory of
the time between or what you did/how you got wherever you are.
For example once while dancing in a club found myself sitting at a table
with strangers. I knew what had happened a regular seizure .When I could
I told the strangers bout my epilepsy. Then a woman told me of her niece who
was also epileptic. All seizures are different but once you know your own you
should not be afraid cause you know what's happening. And the best thing to
keep in mind is it will soon be over and you'll be fine.

posted over 3 years ago
A MyEpilepsyTeam Member said:

Hi I've been on combinations of AEDs for 40 years .You name the drug & I've been on it .My short term memory loss is appalling ,I think this & the suicidal thoughts info is on every leaflet I've ever had .Yes ,I'll admit I've had thoughts like yours ,sometimes it's because I can't be doing with the epilepsy side any more I'm a 62 year old grandma ,with 3 grown up kids & 4 small grandchildren ,It breaks my heart that I can't look after them alone,although if my husband's there it's ok If I get troubling thoughts I think about them ( they live close by) & how much I want to see them grow up.Take care x

posted over 3 years ago
A MyEpilepsyTeam Member said:

You give me hope😘😘

posted over 3 years ago
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