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Sorry to hear that David! I hope that you get those answers at the appointment next month.
Because I had one
My auras feel like dejavu, I have done this before. I get weak and know I must lie down. Feeling is like how you feel before you get the flu. Just don't feel right. I have SAFE ZONES in my home so I… read more
For myself I, say I have Epilepsy, that I have a Disorder or my Condition
D I S O R D E R
I ask this because the site owners and techs are not able to provide an additional search option to search for New Members. And there have been too many New Members over the years who have come once or a few times and gotten frustrated and left because they do not get the true benefit of being embraced by a large enough team to not only make them feel welcome but also be able to provide answers and often personal experience regarding any related to seizures (types, symptoms, auras, side… read more
What does the team want to achieve in the future
Do you view that you had a good life prior to Epilepsy starting later in life? And do you feel that you are cursed, challenged or simply frustrated by life with all of the seizures and/or all of the side effects of medications, surgeries, implants, etc.? Do you feel that others have ceased judging you as an individual but rather only see you as an Epileptic -- thus in some way abnormal? And for those of you who have had Epilepsy since you were a child and have never had any form of reduction… read more
I see myself to be a patient, understanding, honest, and thankful person. For epilepsy willing to wait patiently for success to be discovered. Understanding it could be worst. Honestly say it can… read more
Being a past practioner I'm torn as what I should do so I'm asking advice?
Randy, I agree. And we are never going to change how the majority population treats those with epilepsy or any other disorder or the mental "illnesses" (I put that one in quotes because the… read more
I certainly did not know this until a few minutes ago --when I was researching what international medical committee decides why the label of "mental illness" is used rather than "mental disability" for those that are not labeled as mental disorders (and I did not even know that the mental disorders were not listed as a sub-group of the overall group known as mental illness rather than being in a separate category.
https://www.ncbi.nlm.nih.gov/books/NBK20369/
Did any of you know about this… read more
Many factors add to epilepsy. Continue researching. Be your own best advocate! I am proud of the strength we find to help ourselves! Looking forward to spending time with my Neurophychologist! He will… read more
I was diagnosed with epilepsy in 2012. My seizures are complex partial seizures. Complex partial seizures seem to affect your emotions, reactions and focus. The medication, along with a good neurologist has helped me a lot. My seizures are under control now. I say now because seizures never seem to be under control for the long term. Medication has to be changed, increased, etc. It is frustrating. All of my life, I have had a hard time making friends and have felt awkward socially. I think… read more
In my opinion based upon 38 years of epileptic seizures (focalized and refractory).. Partly
Help is well meant. But sometimes too much too soon isn't great. I find people who don't have epilepsy… read more
Heather, I believe that the type of seizure that you are trying to think of is a Status Epilepticus. When you hear of life threatening seizures, this is what they are talking about. You probably heard… read more