Had Anyone Been Told That Ketogenic Diet Helps With Epilepsy? Has Anyone Tried It And How Did It Help? | MyEpilepsyTeam

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Had Anyone Been Told That Ketogenic Diet Helps With Epilepsy? Has Anyone Tried It And How Did It Help?
A MyEpilepsyTeam Member asked a question 💭
posted December 2, 2018
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A MyEpilepsyTeam Member

Guy is right. You'll know in 3-4 months if its working or if you can manage it.

Bacon wrapped salmon steaks for dinner and buttered green beans and Keto dinner rolls. Whole meal 20 minutes.

posted December 4, 2018 (edited)
A MyEpilepsyTeam Member

Keto for 13 months for me, along with VNS and pills.
I saw a pattern of seizing an hour or so after meals (not all). Showed my doc in my seizure log. He said Keto diet and set me up to his nutritionist/dietician. My wife is onboard too. Makes it easier to shop for.
She dropped from a size 14 to a size 8 in a year! She in a holding pattern on her weight. So am I.
As far as food- we found over time our favorite meals. They are in a rotation on our menu. We eat red meat, fish, chicken. Green veggies. Lots of butter on all. Cook with coconut oil. Switch from grain flour to almond and coconut flour.
I bake and cook. there are alternatives to starchy foods.
I only seize when I get sick. Twice a year. Staring spells are very few. From several a day to one a week. (Sometimes I'm in deep thought, but they say I'm blinking).
I recommend recipes from ketoconnect.net and ketogeious.com and ketogasm.com
Eatthebutter.com (org or net -not sure) is a good source too.
Here's an article:
https://www.medicalnewstoday.com/articles/32085...

posted December 4, 2018
A MyEpilepsyTeam Member

I was told that it helps. I believe it does if you follow it strictly enough. It didn’t work for me and I followed It as strictly as I could for 4 months. It’ll drive you nuts just trying to find high fat, low carb food that tastes good. You have to cook most of it....

posted December 2, 2018 (edited)
A MyEpilepsyTeam Member

i was on it for about 10+ years. i am on a loosely base keto to a MAD (modified atkins diet). it is awesome for my seizures. i used to have um every hour. then i tried the diet and the seizures were every day, mostly at night. i was on a lot of meds 3x daily but during and after i take 2 small meds 2x daily.
it is hard to do for some people. it starts with starving (or intermittent fasting) for a day or so. then you weight and counting the calories. its a high fat low carb diet. the hardest part for me is there is no process foods. some process foods have fillers in it and that is bad for keto and any diet.

posted December 3, 2018
A MyEpilepsyTeam Member

Maybe if you follow it really stricktly itll help. For me it hasnt done much, but i habent tried extremly hard probably.

posted December 3, 2018

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