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Partners As Carers
A MyEpilepsyTeam Member asked a question 💭

Does anyone else have their husband or wife or partner as their full time carer and how does it effect your relationship?

posted November 23, 2018
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A MyEpilepsyTeam Member

I am like a normal person is and take care of myself and worked 30 yrs at GM on assembly line now retired 08 and out going

posted November 28, 2018
A MyEpilepsyTeam Member

My neighbor is my main support person

posted November 23, 2018 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member: In my situation, I'm the one with epilepsy and the caregiver.

My husband has Bipolar and since both of us had health issues, I figured the conditions would be manageable. That theory is far from the truth. I've had to manage his bipolar until he was ready to accept that he had a problem. His meds never worked, so that didn't help. And, in August 2018, he was diagnosed with prostate cancer.

I was his caregiver, raised two kids and found ways to control my seizures. I've also outlived the meds and use naturopathic remedies and Daily Essential Nutrients from Hardy Nutritional's.

If the truth be known, Bipolar is just as debilitating as epilepsy, if not worse. The relationship became very one-sided. Immaturity in certain areas interfered with maintaining a healthy relationship. Because, I didn't have any money, I wasn't able to leave he relationship. I didn't want to raise my kids on social assistance. I stuck it out.

posted November 23, 2018
A MyEpilepsyTeam Member

My husband is my rock and is my full time caregiver. He monitors me when I take baths (to scared to shower because the last time I was standing in the bathroom I had a seizure alone and I broke my sink bowl with my head), he drives me anywhere I have to go, I'm never alone, we work at the same company in the same building (I had one at work at my desk and he was there in a heartbeat)... In my opinion it has made us stronger as a couple and as our own individuals. It has put a lot more stress into our relationship but we are now always alert with one another and checking in more often. Also grown to get to know this side of both of us has given us a stronger bond. I dont like to use the word caregiver because I feel like it implies inconvenience, he is my angel, my encouraging teammate that helps me get through the day and we can lean on one another. I don't know if that helps but you have to take the positive from the negative as much as you can and when you do you start to build up strength to get through the day.

posted December 2, 2018
A MyEpilepsyTeam Member

I have disability and one of my staff at school is my one on one staff and pca

posted November 26, 2018

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