Jeff, Dont wait for ur letter. U only have 60 days to appeal anything. Like I said get with your disability lawyer and have all the paperwork sent over. So your payments can continue. If the 60 days pass and you don't file anything u r out of luck. SS is notorious for leaving out 1 piece of the puzzle, "ur missing letter". They did it with me numerous times u must be proactive they're always going to drag their feet and then say sorry time's up, u out of luck

Social Security feels that there is no reason you shouldn't be on Social Security anymore regardless if you have the Vagus Nerve Stimulator or not . I highly recommend that you and your family get an Attorney ASAP that only handles Social Security and Have your Dr's have all of your medical records and all of you go to court trust and believe you get all of that you won't have a problem. With the Dr's behind you with all of your medical records and the type of seizures and all of the medicine that you have to buy or pay for if you don't have medicine.

Ask ur SSDI lawyer that same ?

@A MyEpilepsyTeam Member did you or your kid still worked or had worked after the ssdi benefits? or if you and/or your wife has too much or too little income? or how old is your kid? or did you move? did you change your cell/house phone?
i am asking this because it happened to me. i was young when i had seizures and i had to re enter when i was a teen and when i was 20-21. the ssi/ssdi can also say that you and/or your kid are 'cured' and you and/or kid had to say that you have a disability. i do not know your terms and your kids terms for ssi/ssdi paperwork. you have to talk with the both your dr and the ssdi people.

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@A MyEpilepsyTeam Member
Nothing wrong with Pippa. Just that disability is not enough to live on, so they pay her too, so her needs are met.- until she's 18 yrs old.

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