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Rescue Therapy For Aura Clusters

Rescue Therapy For Aura Clusters

Hello all

Happy friday .
I'm an zebinix's to control my focal seizures since July 2017 . My epilepsy is the result of a cavernous malformation that hemorrhage and was removed in 2005 . I still get aura's quite regularly, my neurologist also gave me Ativan but said to use them sparsely. I think this was because of the addictive quality. Now I'm unsure should I take one when I get a aura. These aura come in clusters and leave me wiped out after and very shook. Any advice who be appreciate.

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A MyEpilepsyTeam Member said:

first of all hi.
did you know that aura are a type of seizure and aura clusters are really bad. when you have any seizure, your body needs to recover afterwards. it may take a second or it may take a hour or more. well when you have a seizure cluster, your brain didnt have time to recover.
so sparsely means 'in small amounts'. take a little bit once a day or once every other day. maybe once a week.
call your dr about ativan and clarify about it. tell um if you are taking it once every morning or when i have a seizure or what?

posted almost 4 years ago
A MyEpilepsyTeam Member said:

I almost always take my rescue med, Valium, when I have a cluster of auras. If I get one aura I will use my VNS magnet, if it happens a second time I repeat, If I still feel like somethings not right I take the med, if not I wait and see if it happens again. If it happens a third, I go to the med. I've had to use it frequently before and have had no problems with addiction to it. I'm actually on it for anxiety as needed also. That is why I chose valium, because it didn't make me feel "high" or "stoned". I usually can't tell that I've taken it other than that the symptoms stopped.

posted over 3 years ago
A MyEpilepsyTeam Member said:

Taking Ativan once in awhile works for me when I get auras...it seems to stop them from continuing. I’m definitely not addicted to them either. Good luck🙂

posted almost 4 years ago
A MyEpilepsyTeam Member said:

I think this might be what I’m having. Auras. Been to the consultant this week & been told that I’m controlling it best I can & as it’s not interfering too much with my life I’ll be ok & they don’t want to change my meds’ for nocturnal epilepsy. The scans I’ve had have all come back fine . I have clusters of these strange feelings. Normally 2/3 a day for a couple of days. Really really tired after. Could sleep for hours. But never been recommend anything to treat them when they happen. I might go back and show him this.

posted over 3 years ago
A MyEpilepsyTeam Member said:

Hi kikilillis and welcome to the site and hope all going well for you to

posted almost 4 years ago
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