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What Symptoms Can People Have When They Are Not Having A Seizure?

What Symptoms Can People Have When They Are Not Having A Seizure?

I always seem to have some sort of headache all the time. Sometimes its barely there. I also have trouble pronouncing words sometimes and just feel like im not really there in the moment. Its creepy. Its like im dissociating. When im explaining something to somebody i also sometimes forget what i was talking about and zone out for a couple seconds, then i cant seem to remember what i was talking about. It also happens when other people are talking… read more

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member Sorry to say, but what you are experiencing is all too common and never really goes away (expert perhaps for those who are able to perhaps stop their seizures).

The headaches, problems with short-term memory and memory recall, temporary loss of words, absentmindedness, etc. that you are describing are all the same for me.

And unfortunately, there are multiple factors involved for us, besides immediately after a seizure or even when experiencing an aura (simple partial seizure for those of us who have complex partial seizures). These including epilepsy/seizure disorder itself, but also side effects of our medication (ALL anti-convulsants have the side effect of hampering memory recall), and stress and emotion (STRESS makes everything worse and vastly increases our chances of everything BAD--not just triggering seizures but also heart attacks, strokes, etc.)

I am frequently frustrated/embarrassed in trying to have a regular in-person conversation of any type (even when I was working and needed to speak during a department meeting and had what I thought were all of the keynotes I would need in front of me). In my case, and possibly it is the same with others who have auras (at least maybe others with complex partial seizures), if I try to push my brain to recall something that I cannot currently recall, then I always trigger an aura (simple partial seizure).

NOTES are the key for those of us with seizures who have the issues you mentioned. And also trying to do whatever can take your mind off of it and relax you--reading is great for that. Unfortunately for me, when I am in a bad period (especially when experiencing auras but other times with just a spike in stress level), reading becomes frustrating and depressing because I not only lose words, but also phonics and even names of numbers (found that out when paying Microsoft Bingo while in such a state).

The important thing for you to know is that you have many of us who know exactly how you feel and are here for you to talk and vent to.

If you are a religious person, then praying can help too. God (by any of God's names) doesn't require you to speak to pray to God.
NOTE: No pronoun is appropriate for God because God can take any form God wants.

posted over 2 years ago
A MyEpilepsyTeam Member said:

I have the same problems but sometimes i can't hear anything at all. it comes on at random times like when I'm working I could be speaking to a customer and poof my hearing is gone but I've learned to stay calm, if your situation is anything like mine its best to try seeing different doctors never settle till your happy and if have questions ask how are you adjusting to your new medication. I should know I have been on three different ones thus far...

posted over 2 years ago
A MyEpilepsyTeam Member said:

i think you are having an aura (i call um space outs). its an almost seizure. the sign i take is tingling, pins and needles in my brain. i zone out. i cant think or i my brain can think of it but my mouth cant. i used to have um every hour. and i have phases of seizures. ask your dr about that.

posted over 2 years ago
A MyEpilepsyTeam Member said:

I have the same problem maybe you could try writing some notes to help you out that seems to be helping me at the moment.

posted over 2 years ago
A MyEpilepsyTeam Member said:

Hi it was weird reading your post as I've noticed the same stuff happening to me especially the word pronounciation I can see the word in my head but it comes out all higglty pigalty . And I have to search in my head for some words . My short term memory is non existent. I always say to people don't expect me to remember that till next week lol.

posted over 2 years ago
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