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Complex Partial Seizures
A MyEpilepsyTeam Member asked a question 💭

I have complex partial seizures. My last one was in April. I was wondering if anyone else is aware if they have one in their sleep?

Or recently I’ve been having staring spells, but still conscious and still can hear things. I don’t jumble my words but it may take me a second or two to respond. They just aren’t quite like the spells I had when I was first diagnosed. Has anyone ever had them change from over time?

posted September 25, 2018
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A MyEpilepsyTeam Member

I have had seizures in my sleep. I know when I wake up in the morning and I have chewed the inside of my cheeks pretty badly. Also, I have had what is called a mild break through seizure (that is what my epileptologist calls them) since my surgery. It's a very strong aura. I don't go completely into the petimal and can still hear, and see. Hope that helps you.

posted September 25, 2018
A MyEpilepsyTeam Member

I have complex partials those are the kind of nocturnal seizures I get at night. I'd wake up from one. I don't get starring spells though.

posted October 12, 2018
A MyEpilepsyTeam Member

I have Complex Partials as well. My wife tells me I have them in my sleep at times also. When I have them, and I just think something that goes with them, is staring spells...Mine have gotten progressively worse. I just got done with a wild procedure where leads were placed in my skull and I was taken off my meds. This was done to induce seizure in order to find exactly where the problem was coming from. Once this is done, the Epileptologist can see if I am a candidate for a surgery where that small part of my temporal lobe could be removed in order to reduce or even rid me of my episodes. I am tired of this lifestyle so much that I am willing to try this. The worse part was just have the seizures and being in a bed unable to move for 5 days.

posted October 3, 2018
A MyEpilepsyTeam Member

I on ly new if i called out in my sleep and woke someone up or in the morning there would be times i would wake up and pack a bag like i was going some place[very scarie] not remember moments in time only a few times did i leave the house without anyone knowing this goes back when my epilpscy was out of control.

posted October 2, 2018
A MyEpilepsyTeam Member

I have complex partial seizures. They changed quickly from just staring to yelling and making noises then to losing bladder control. The only way I would know if I had one- or many in my sleep was everyone else in the house would wake up to the noises I was making. When I’m awake and have them I’m still slightly aware of what’s going on just no control. But recently they changed to me falling on the ground and fully losing consciousness. In general tegretol works pretty well for me though and now it only happens every few months. I would like to try cbd oil.

posted September 26, 2018

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