Im not having much luck with meds and have looked into the RNS but cannot tell if it is available in England?!
the medicine i take is lamictal. that might help. soo far it's helped me the most.
Hi @A MyEpilepsyTeam Member, I’ve never heard of RNS - is it a med or a device like VNS (Vegus Nerve Stimulator)? Me, I’d been on over a dozen different anticonvulsants before they decided to do surgery. They said that mine was ‘intractable’ Epilepsy yet look at me now other than the odd hiccup I am over 18 years seizure free and the surgery worked until I made a very stupid and costly mistake - can tell you about that another time... don’t give up on your meds - I know they are a nuisance but it can take a number of years tweaking on which and how much of each med your taking to find the exact dosage/treatment needed. Don’t give up on them - why else are we called Patients (Patience), 😂!
Talk2u soon- I’m in work again tomorrow for a few hours and Tuesday and some other day this week (3 hours a day - takes me longer to drive into the city centre and home, ha! Wish me luck this is my first week back in over 3.5 YEARS(!!) - am off to bed.
Nighty night,
Keep your chin up as it’s always worth it.
Talk2u soon,
xoxoxo,
@A MyEpilepsyTeam Member
I don't think many people get to have them and its usually a last resort. They make you try a lot of medications first.
Sorry not sure about england i live in ireland sorry bit not on them meds anyway
I used to take that medication it made me hairy lol