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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Worsening Seizures

Worsening Seizures

My boyfriend has had seizures for 17 yrs and they are starting to get worse and closer, he wants to stop them. Any suggestions on what to do???

A MyEpilepsyTeam Member said:

Have him see an epileptologist if he is not already. He could have his brain activity monitored for a couple of days, possibly change his meds or be put on more meds, try the ketogenic diet, have a VNS or an RNS implanted, or have surgery if he qualifies.
Unfortunately, sometimes epilepsy does not get better.
About one-third of epileptics have uncontrollable epilepsy. This is most common in people that have adult onset epilepsy and build up resistance to medications. I'm one and my seizure activity increases yearly. I'm sorry for the bad news.

posted almost 4 years ago
A MyEpilepsyTeam Member said:

I would either try and find a Epileptologist or a well known neurologist.

posted almost 4 years ago
A MyEpilepsyTeam Member said:

Hello, I was reading this and could relate to it.Meds. are big problem with this.Any time you change meds or change dosages they can make things hard.It took years for them to find my meds that work.I also smoke cannabis it helps a lot with the seizures and with the pain and feelings after one. I hope they find your medicine.

posted almost 4 years ago
A MyEpilepsyTeam Member said:

thanks that helps alot for he has been seeing the same doctor this time

posted almost 4 years ago
A MyEpilepsyTeam Member said:

Oh, not all Nuerologists are Epileptologists. You need to make sure you have someone who is a specialist.

posted almost 4 years ago
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