Is It Normal To Have Your Blood Tested While You Are Taking Dilantin? | MyEpilepsyTeam

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Is It Normal To Have Your Blood Tested While You Are Taking Dilantin?
A MyEpilepsyTeam Member asked a question 💭
posted July 11, 2018
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A MyEpilepsyTeam Member

Thanks, Chastity. Both my neurologist and the pharmacist warned me about the effects of Dilantin on the bones and gums. The neurologist told me to tell my dentist that I’m now taking Dilantin, something I’ll do at my appointment next month.
In the interim, I’ve bumped up my flossing and brushing 3-4 times a day. I’m willing to take the chance on the long term side-effects over the side-effects I had on Keppra. I appreciate your cautionary advice, though.

posted July 13, 2018
A MyEpilepsyTeam Member

You do need to read the side effects of dilantin. It can be rough on your teeth. Thats why they took children off of it yrs ago, but if it stops your seizures i would probably take it. Talk to your Dr or pharmacist about it. I mean with me ive cracked teeth and chewed my mouth up so just having seizures are rough on your teeth too!

posted July 13, 2018
A MyEpilepsyTeam Member

Hi Sharon. I’ve only been on Dilantin for about 3 months, but in that time I’ve only had one seizure, and that seizure came during the first few weeks I was taking it. I was stil taking Keppra at that time, gradually being weaned off of Keppra.
For me, at this stage, Dilantin has effectively stopped the seizure activity, without the side-effects I experienced on Lamictal, and particularly, Keppra.

posted July 13, 2018
A MyEpilepsyTeam Member

Is the dilating better?

posted July 13, 2018
A MyEpilepsyTeam Member

Thanks, Chastity. I was just switched from @Keppra to @Dilantin a few months ago. I thought my neurologist said that I would have to be tested once a month for the time I’m taking it. My wife, Dianne, thought that I only needed to be tested for the first couple of months to make sure that that the toxicity levels were in a safe range.

posted July 11, 2018 (edited)

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