when i was a child (10-16) years old i was prescribed but when i left school the doctors changed my medication. why was this when mysoline was controlling my epilepsy. whilst on mysoline i was having 1 maybe 2 fits aweek but since they change my medication my fits have increased and i am unable to work

Do you view that you had a good life prior to Epilepsy starting later in life? And do you feel that you are cursed, challenged or simply frustrated by life with all of the seizures and/or all of the side effects of medications, surgeries, implants, etc.? Do you feel that others have ceased judging you as an individual but rather only see you as an Epileptic -- thus in some way abnormal? And for those of you who have had Epilepsy since you were a child and have never had any form of reduction… read more

Hi
- I feel like I should be working and doing things that I did prior to my epilepsy
- I regularly feel like I shouldn't be on disability and that I can do everything.
- My family and my Dr have been telling me that I can't work or do most things on my own especially with my myoclonic seizures as they have caused me to burn and cut myself when cooking, dropping things etc...
- I used to be a nurse and don't see myself as being disabled. Even on here I see and think that there are people… read more

I have anxiety and sometimes have panic attacks that seem to get worse when I am in a public place ( find it difficult in crowded places ) which always causes me to have seizure how do you handle them

My seizures last about 5 minutes (or less), although the seizure stops I still remain unconscious for long (anything between 10-40 minutes), should someone seek medical assistance or is it best to just to just wait it out. My neurologist says there is nothing they can do so best just to wait. It’s a terrible feeling and it’s a struggle to regain consciousness, move my limbs and open my eyes. I just want a second opinion to set my husband at ease when it happens.

Do any of you feel that travel makes your seizures worse? I once had a seizure while on a cruise ship - that was barrels of fun, but I did have the sick bay all to myself. And/or how do you carry your pharmacy of medications with you?

Lots of us have to stay under controll of others while some dont out of fear or need. Some of us refuse and go about on our own. Either way we all struggle either financially or body function or how we feel. How do all of you feel about your needs and has anyone ever known and taken advantage of you? If not have you ever fealt sheltered and how do you stay free even on your worst days.

Does anyone else feel guilty about having a seizure? I know I shouldn't but I feel like I get in trouble when I do.

I at one time was told I had grand mal, then went to petite mal now I'm told I have generalized primary seizures. I tend to not understand how this is possible and wonder could doctors misinformed me or is it actually possible for the diagnosis to continuously changed and why/how does this happen. what causes this?

My neurologist prefers that I contact him after a grand mal or a large amount of absence seizures in a short amount of time. Right now, I know that I have hit 4 of my major triggers in the last 3 days causing me to seize.

If you know you have had triggers (lack of sleep, stress, lights, etc) that cause your seizures, do you still contact your doctor?