tooth decay and bad breath in a child with dravet syndrome and epilepsy | MyEpilepsyTeam

Connect with others who understand.

sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "tooth decay and bad breath in a child with dravet syndrome"

reset
Has Anyone Tried The Keyo Diet? I Keep Hearing It Is Good For Those With Epilepsy.
A MyEpilepsyTeam Member asked a question đź’­
•
View reactions
A MyEpilepsyTeam Member

My Dr. does promote and is a specialist in the practice of it. However, she does not suggest it for everyone because it is a very strict diet and you must stick with it. I have young kids and active… read more

Any Suggestions As To What I Can Do To Help With My Memory? I Have Grand Mal Seizures And They’ve Taken Such A Toll On My Memory.:(
A MyEpilepsyTeam Member asked a question đź’­

Grand mal seizures for 30 years. About 12 or so a year.

•
View reactions
A MyEpilepsyTeam Member

Make laminated cards of things that are important to you and always have them near your bed side to look at daily as a habit and reminder

Experience With Using Lamictal With Either Zonisamide Or Clobazam???
A MyEpilepsyTeam Member asked a question đź’­

I have been on Lamictal (800mg) since diagnosed 20 years ago which controlled seizures well until 3 years ago (have several Gran Mal per year). Dr added Keppra (3,000 mg) but hasn't seemed to be effective and causes rage issues. She is now suggesting Clobazam or Zonisamide. Anyone with a combo of either with Lamictal?

•
View reactions
A MyEpilepsyTeam Member

Keppra(The Rage) will give you anger, anxiety and depression. Lamictal will give you a rash, dizziness, headaches and loss of balance. Zonisamide will give you headaches and dizziness and other side… read more

How Many People Travel As Part Of Their Job?
A MyEpilepsyTeam Member asked a question đź’­

I'm trying to find a higher paying remote position. A number of roles I'm looking at are twice the salary, but they require travel anywhere from a couple days to a couple weeks each year. I ask for an accommodation and let them know I can't travel and I have coordinated many events by assigning on-site staff and am with them virtually all day so any hiccup is promptly addresses. I get to be one of the final candidates and then never hear from them, well except the email that says you are no… read more

A MyEpilepsyTeam Member

I am in sales which requires local driving. When I was hired I had been seizure free for 5 years so I didn't bring it up. Then I had one at work followed by 2 more within a 6 month period… read more

Does Anyone Have Any Good Experience On Topamax? For Seaziures?
A MyEpilepsyTeam Member asked a question đź’­
A MyEpilepsyTeam Member

I used to take that never really did anything for me

Do Any Of You Have Rage Seizures And If So How Do They Differ From Just Regular Rage Episode
A MyEpilepsyTeam Member asked a question đź’­
•
View reactions
A MyEpilepsyTeam Member

l too have had the monster a very long time.l really hope he doesn't have it but when he went from the Army Nat'l Gaurd too Regular Army he wasn't in it a year before they gave him a dishonorable… read more

Having Epilepsy How Does It Feel If You Are Told Not To Worry About Your Seizures Because You Know You Will Be Okay Afterwards?
A MyEpilepsyTeam Member asked a question đź’­
A MyEpilepsyTeam Member

Well it’s an illness that we have. Worry is not good for us. Afterwards having a seizure our brain needs to recharge. When I lost 2 brothers it made me realize being epileptic it could be worse. There… read more

Re: Taking Meds At Exactly Spaced Times By Your Dr. Does Anyone Have Trouble Keeping A 12 Hour Apart Schedule And What Time Frame?
A MyEpilepsyTeam Member asked a question đź’­

It seems like taking mine around 9:00 p.m and 9:00 a.m. seems to help.

•
View reactions
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member What do you mean? It could just be the meds. The consistent time is only meant to help the meds. so if something has happened since then they would adjust the dosage or if it… read more

Does Anyone Lose Their Appetite After An Aura Or Seizure?
A MyEpilepsyTeam Member asked a question đź’­
•
View reactions
A MyEpilepsyTeam Member

I see a dietitian as well and have small milky drinks supplied for the same reason, I don't have a big appetite, what can have effect on your epilepsy and your overall health.

What Are Some Things That U Do To Protect Ur Heads From Violent Seizures? Mine Occur @ Night. Should I Wear A Helmet To Bed? 🤷‍♂️ 🙆‍♀
A MyEpilepsyTeam Member asked a question đź’­

I am extremely violent and strong. I have flipped tables, fallen down flights of stairs, anything to try and "get out" of these seizures.

A MyEpilepsyTeam Member

I understand the incredibly strong part. Comes with the big seizures. Your muscles really work overtime when these happen. If they're happening at night, it might be worth looking at "softening" your… read more