I understand this feeling. Sometimes I feel like people think I’m crazy and just making things up. Until they experience first hand what we go through they will never fully understand. I came on here for that purpose as the people understand similar episodes.

I find it easier sometimes to write down my thoughts and feelings. Doing this has helped me when I am at a loss for words. Also, before going to the doctor, try writing down what you want to talk to him/her about. Bring that paper with you and use it as a reference, so you don't lose what you're trying to get help with.

Lots of times I struggle explaining things. Sometimes if I don’t have the chance to think and need to answer right away , I mess up on what I want to say. But when I’m relaxed and can ponder over the question I end up with a more clear answer. By then it’s too late and not worth bringing it up.

All the time. What really messes me up is when im talking to someone and in the middle of saying something they interrupt me. I came up with my own way to fix my problem. I deal on a daylong basis with very technical medical equipment helping companies fix them on the phone. I even do this with family members. Text or email. I can sit, think and type exactly what i want to say. I have even told my family not to interrupt me when im asking or telling them something

Bob

I feel my Specialist doesn’t really care or take time to listen to me and is very condescending