I’m new and have so many questions. I have no one to talk to about seizures. But this is the main question I find asking myself. Since I started taking AEDs I feel my anxiety has gotten ten times worse. I constantly feel the aura of having a seizure. I feel so frightened of leaving home.
As epilepsy is something to do with our brains, it is definitely connected with our emotional state as well. I know that my own experience with my diagnosis was that my seizures thrive during stress & anxiety. Now these two things unfortunately the world all suffers from epileptic or non-epileptic - they are natural reactions of our body trying to protect us. When you are starting to feel anxious know that it might not be just the medication that is worsening your state, but also just your mind. The more you think of it, the more build up there is so your brain tells your body to create chemicals that results in the feelings of anxiousness/stress/the aura of a seizure. So as lovely Katt stated above, the best is to seek ways to feel calm again. Talk to someone that can help you keep balanced, listen to music that will distract you/relax you - whatever it is that can make you even forget about it for a minute - a second! Then take the flow from there to realise that you can train your brain to not build towards 'needing' a seizure :) A little bit of a cliché - but pretend it's not there until it's there.
I hear you. My anxiety went through the roof after the seizures were no longer controlled. I used to be very active and busy, now I feel foolish because I can have the simplest task to complete or place to go, and I'll stress like crazy about it. Even if it's something I would normally enjoy!
I find myself anxiously waiting for evening time, when I feel more relaxed and less is expected of me.
You're not alone, and the problem is not you! It's chemicals and electricity.
Hang in there!
Is there any other ways? If I look at my phone too long it hurts my eyes because I also have IIH
Its pressure headaches because of too much spinal fluid. And my eyes become extremely sensitive
YUP!!!!! Anything that raises heart rate or blood pressure, anxiety will do it. I hate it. Find something interesting that you can jump into fast. A puzzle game on your phone, a rigid cube, etc. Doesn't always work but distracts you fast.