Connect with others who understand.

sign up log in
About MyEpilepsyTeam

Connect with others who understand.

sign up log in
About MyEpilepsyTeam
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Epilepsy Cause Unnatural Fear?

Does Epilepsy Cause Unnatural Fear?

My son is 7 years old and he does not want to sleep by himself or with a sibling. He wants to sleep with my husband and I all the time. I am wondering is this normal or does it have to do with the epilepsy in some way or form. He says he is scared and just can't sleep on his own. This has been happening since he started having seizures in 2015 a little more now. Before seizures he slept on his own without a problem. He does sometimes complain about hearing noises and just about freaks out with… read more

A MyEpilepsyTeam Member said:

I was fine as a child to sleep with tremors but once I got grand mals as an adult now I always have to have my husband with me & even my puppy because they both feel like they protect me from seizures. My puppy knows ahead of time if something is going to happen & my hubby knows what to do so he always makes sure I'm fine.

posted over 4 years ago
A MyEpilepsyTeam Member said:

i was 5 when i had my first seizure. i think he is afraid of having a bad seizure and no one is there. it is somewhat normal. do you have a stuffed animal (a teddy bear or any stuffed aninal)? if not buy a stuffed animal. say that this animal is your security animal. if you get afraid just hold the animal. i have my dog and bear near my room and i still have um and i am 32.

posted over 4 years ago
A MyEpilepsyTeam Member said:

Yes it will, I’m like that as well, but I force myself to stay by myself because there’s nothing they can do when I had seizure so I don’t want they to be worried. Also my one isn’t that serious as other so now I let myself to taking care by myself if I could.

What I can tell you here is what I have before seizure and after seizure (of cause not everyone is the same) just what I experienced, Im scared when I have the symptoms but sometime I could have it for couple week and still not having seizure, when the symptoms come or after seizure I really don’t like noises and scare to be alone because when it too quiet no one around me to hold my hand I’m scare you couldn’t tell which world you in when you got the symptoms of seizure coming so you want some one to be with you and some one you trust to make you unfraid of it.

When people talking in the kitchen and I was in my bedroom I can felt the voice is so loud like it next my ear, and a tinny little sound of close door, knock door or something drop I’m will freak out and my heart beating is getting fast. Hope he will getting better!

posted over 4 years ago
A MyEpilepsyTeam Member said:

Hi @A MyEpilepsyTeam Member . I’m happy to of helped you. I hope you and your son have a great experience with the Epileptologist. ( epilepsy specialist ) like I have . I have had an Epileptologist since I was 18. I was able to get more done with them , than I did with my Neurologist.

posted over 4 years ago
A MyEpilepsyTeam Member said:

Thank you all for the useful answers. They all make a lot of sense. He did see his Neurologist recently and he is being transferred to a epilepsy specialist. And also will be admitted for further thorough testing in February. He has been on many medication many of which have caused him to be excessively aggressive so he was left on Depakote which really does not control his seizure completely so we will be testing for perhaps a better medication, VNS, or brain surgery. @A MyEpilepsyTeam Member wow want aware of the info you gave me thank you. He has been on melatonin. Had to stop because he was excessively tired and sleepy. Had to give him last night because he did not sleep the whole night.

posted over 4 years ago
Already a Member? Log in