Do you keep a record of your seizures and if so, how?
I have been keeping a record of every little aura, with, spasm partial, simple partial and tonic-clonic seizure I've had for the last few years, when, where, sleep hrs, intensity alcohol or not
I did it in Excel. I then took it with me to my appointment with the specialist. He was very impressed, and I did see some analysis to see if there was a trend.
I bought a Fitbit too, the idea being to record my HR in my fits. I then didn't have… read more
I've tried to keep records of my seizures and medication since I've been suffering but I find it so so difficult because of my depression and the stupid voice in my mind saying what's the point, no one cares. Very upsetting. Now I've just got random monthly tables made up with no dates on or anything. Useless.
Tilly, Sounds like a detailed record that involves alot of work from both you and your doctor-as well as the source of some answers. Linda Concerned
I know it’s your depression talking . Myself and I’m sure everyone else on on this site cares. If there are people around you or know you and they don’t care, keep all of us in mind . We all care and we aren’t even neighbors ( non that I know of at this point ) on this site .
I have been keeping records of my seizure for the past 3 years. It has helped my neurologist & myself to realize what the cause of my seizures was, not enough sleep, stress, over work ...
I used too any years ago. My seizures are mild; absence and peti mal. They are just enough to make me what the state calls, "unemployable". My Seizures come so frequent or infrequently: I've gone days with nothing; then I'm on the floor or "O F ---= here we go again" one of those creepy, "I'm going to get you",feelings". 'd go days with nothing then have one of those feeling every minute or less a page of "time" A, notation of type pf seizure. I used a day planner to keep track of seizures,
Those who live distance from your neurologist, epileptologist; if you aren't already doing so, use E-mail or fax to keep him/her u to date.