I also had momentary blindness (blackouts) for many years with my partial seizure diagnosis, but @Keppra XR has been great. I had to learn how to help it help me though. A few things that made all the difference in the world for me are: avoid fruit juice and absolutely no citrus of any kind, Keto diet or modified version, low-low carb, if it’s white I don’t eat it. Eat healthy protein snacks throughout the day (meat, nuts, seeds) veggies too! Limit sport drinks (if at all), regular sleeeeeep schedule, limit TV and computer, at least 30 minutes daily physical excercise and stay well hydrated. Keppra is processed by kidneys.

Thank you. We just saw another neruo. She is leaning more toward migraine vs. seizure. I think I follow you on too high and too low. It seemed 2ml was too low but 5 was too high. I will search to the ends of the earth to find the right doctor and answers.

This is very interesting. Why is citrus an issue with Keppra?

Hi @A MyEpilepsyTeam Member, an idea you can do , is call the Epilepsy Foundation in your state and find out if there are any Epileptologists ( Neurologists that specializes in Epilepsy ) in your area. If not , maybe they will know of a respectful, and trustworthy Neurologists.

I myself have an Epileptologist. I’ve had better success with them than I did with a regular neurologist.

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I’m very sorry to hear about your baby. Honestly, as adults we have the vocabulary to share what we feel and are going through. Children don’t. This is where we all need to make a difference. I can tell you that in journey medication side affects practically mirror seizures and symptoms. Just look at the indications. There are therapeutic levels and if mine are too high or too low, same effect. If your child is having worsening seizures, have a heart to heart with his doctor. Or, sometimes getting another opinion works until you find the right specialist. Bless his heart 💜.