I find that when I eat a full meal, go out, come back and get 6-8 hours of sleep, and wake up in the morning I am OK. I'll check my phone or do something real quick, fall back asleep, and when I wake up the second time is when I will always have a grand mal. I get a shakey and dizzy aura before it happens.
Now, I don't go out nearly as much and try keeping myself from falling back asleep after the first time I wake up. It surprisingly helps keep the seizure away (but not… read more
My grand mals 98 percent of the time happen in the morning shortly after I wake up, the others seem to happen usually after taking a nap and I always know when I'm about to have one because I get clusters of Petit mall before I go into a grand mal but sometimes I get that shaky feeling during the day and get worried I'm going to have one.
Mine are always different. Sometimes i can go out and drink a bottle and 12 pk (not really) of beer and have no problems. Then the next time i might have a half of a beer and ill go down in the morning. Ive never had one during drinking. Ive been on a schedule qhere i have a GM every 3 to 4 months. So when it hits three months i start paying attention to what i do.
And my doctor's think that my stress is from everyday things, most of my stress is worrying when that next seizure will be, especially after waking up.
@A MyEpilepsyTeam Member I'm very similar!! Everyone is paranoid around me in the mornings (after drinking especially), which almost makes me more nervous and helps lead to that GM. And like yours, sometimes they occur more in the afternoon after a few absence seizures (which happened to me at work multiple times, and I was on the phone basically the entire time.) It's tricky because no one really notices the absence, they just see the drop. Awkward for everyone involved - even the other person on the phone! (Sorry that was so long... just venting haha).
@A MyEpilepsyTeam Member It's so frustrating right?! All you want is sleep, but you know when you wake up there's a very large chance you'll have that GM! Normally right in the morning, but it's occurred later in the afternoon for me too after a nap. You can do everything in your power to avoid it, but it's still something in the back of your mind to stress about.
Yep, i have concluded :- anytime i want to have a rest/lay down. As with, when your had a bad night of tossing & turning seems to be a main tripping start point for my own GM’s but, good to hear of you have noticed some triggers like us 😉 “ We can’t and never get the warnings before everyone we have, but it sure helps, in thy long run.. from a 50 pluser suffer. 🙂