Epilepsy is my worst night mare I wouldn't even wish it on my worst enemy. I have had it for 2 years now and I always feel strong and that I can handle it but once in a while I just breakdown. Everyday is hard and I wish they find a cure for this disease asap because I don't want to be afraid of my own body anymore.. love you all
I hear you. I'm at the national with my very brave son during another EEG. He's having 2 or 3 seizure in the evening partial seizures only 20sec long. After 2 months of it? It becomes a bit over whelming.
Hey there, I believe I’m in a similar position, I’ve only had full blown seizure since 2015. Not being able to trust your own body to keep you safe is horrible! I know that you must try and keep it all in but talking about it, even on a site like this can be really helpful. As you’ve said you have had this for 2 or so years, though it may never be predictable it may become more treatable. :)
You’re not alone.
Sometimes I just lay down and tear. Or just sleep before my son gets out of school.
Stress, depression, frustration. Despite the fact that I’m considered seizure free. Short term memory is my enemy.
I know how it feels! I am in an emotional breakdown as soon as I have those "seizures" which I don't even know what they are. Nobody can help me. I think I need to calm myself down and nobody else can help me! Not even pills can. I started getting help from a psychologist which I think is helping a bit. I hope meditation and understanding of yourself is a way to help!
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